Supporting Excellence in End of Life Care in Dementia (SEED)
The SEED programme is funded by the National Institute for Health Research (NIHR) under its Programme Grants for Applied Research Programme (RP-PG-0611-20005) and is led by the University of Newcastle, in collaboration with partner organisations including University College London, the University of Hertfordshire and the National Council of Palliative Care.
Co-Applicant Dr Liz Sampson, MCPCRD will lead Workstream 1.
The Supporting Excellence in End of Life Care in Dementia (SEED) programme aims to support professionals, both commissioners and providers, to deliver good quality, community-based end of life and palliative care in dementia, through the development of an Integrated Care Pathway (ICP).
In order to provide a strong theoretical and practical foundation for the development of the ICP, Workstream 1 (WS1) led by Dr Liz Sampson, will (i) map the evidence base for existing end of life care guidance and/or pathways in dementia, (ii) update recent comprehensive reviews of quality indicators in end of life and palliative care, and psychometric properties of instruments to measure end of life care in dementia, and (iii) identify existing UK services in end of life care in dementia and map national "best practice" sites. An initial "broad sweep" survey of UK services will lead to an in-depth service evaluation of selected services to inform the development of the ICP.