Enhancing electronic communication and clinical data access across primary and secondary care

Venue: Room G01, Farr Institute of Health Informatics Research, 222 Euston Road, London, NW1 2DA. 

Speaker 1: Professor Adam Timmis, QMUL and Farr Institute of Health Informatics Research

Title: Enhancing electronic communication and clinical data access across primary and secondary care.

Professor Adam Timmis graduated from Cambridge University and trained in cardiology at Massachussetts General and Guys Hospitals, before taking up his present post. The rapid-access chest pain clinic he pioneered changed UK practice by spawning a nationwide clinic network. He chaired NICE guideline groups on investigation of stable chest pain (2010) and management of angina (2011), was former Editor of Heart (2006-2013), is an executive member of the National Institute of Cardiovascular Outcomes Research (NICOR) and chairs the Academic Group of the Myocardial Ischaemia National Audit Process (MINAP). He is now an executive member of the Farr Institute and the founding Editor-in-Chief of the European Society of Cardiology’s Journal of Quality of Care and Clinical Outcomes.

Speaker 2: Professor James Boyd, Centre for Data Linkage, Population Health Research Network, Australia

Title: Implementing privacy-preserving record linkage in operational linkage systems.

While record linkage has become a strategic research priority internationally, legal and administrative issues prevent data linkage in some situations due to privacy concerns. Even current best practices in record linkage carry some privacy risk as they require the release of personally identifying information to trusted third parties. Application of record linkage systems that do not require the release of personal information can overcome legal and privacy issues surrounding data integration. Current conceptual and experimental privacy-preserving record linkage (PPRL) models show promise in addressing data integration challenges but do not yet address all of the requirements for real-world operations. This presentation aims to identify and address some of the challenges of operationalising PPRL frameworks.

Light refreshments and a sandwich lunch will be served from 12:00 noon.