Here are some questions we commonly receive from participants, along with model answers.
You might like to download the questions and answers (pdf) to keep with you when speaking to patients.
The MRI Scan
- 'I had an MRI scan in hospital - why do you need to check that I am safe to have one for this study?'
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Because the UCL centres where the scanning is carried out are research centres, they have different guidelines compared to hospitals, e.g. the research centre may not be able to scan some types of hip replacement even though they might be approved for scanning in a hospital.
- 'I really want to help but I need to be sedated before an MRI scan because I find them scary - is this possible?'
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It is not within the PLORAS protocol or research ethics to administer any medication so this is not possible.
If you are anxious about having an MRI scan we suggest that you do not take part.
- 'What if I get there then change my mind about having an MRI scan?'
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Sometimes people change their mind about having a scan.
The research team fully understand that this can happen and will not put any pressure on you to have a scan.
Your expenses will still be reimbursed.
- 'Can the research team tell me if I am at risk of having another stroke from looking at my scan?'
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No, the MRI scan is purely for research purposes and not medical advice.
If you want to have an MRI brain scan due to health concerns, please note that the research environment is not appropriate for this and the type of scan they do will not necessarily show medically useful information.
If you are concerned about risk of further strokes you should speak to your doctor.
- 'What happens if the researchers find something unusual on the scan?'
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If an unexpected abnormality is seen on your research MRI brain scan, the PLORAS Research Team will contact your GP.
- 'Will I get a picture of the scan?'
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Yes, the research team can provide copy of the scan on CD a few weeks after your appointment.
The Predictions and Recovery
- 'Can the research team give me a prediction about my language recovery after looking at my scan?'
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No - they are not yet able to give you a prediction but this is what they hope to be able to do for future patients.
- 'Will the research help me to recover?'
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No, it is not a therapy study.
The research team may be able to put you in touch with therapy studies or clinics where appropriate.
The Appointment
- 'Can I bring someone with me to the appointment and will they cover travel expenses for them too?'
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You can bring someone with you and both of your travel expenses will be reimbursed.
There is a limit of around £150 for travel and we recommend that train tickets are booked in advance to help keep within this budget.
- 'Can the research team pay for overnight accommodation?'
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No, unfortunately they cannot pay for overnight accommodation expenses.
People who visit them from outside London and cannot travel there and back in a day often time their visit for when they are planning to stay with family or friends in London.
- 'Will I get a choice of appointment dates?'
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Yes. The research team are very flexible with appointment dates. You can wait until you have finished your rehabilitation or feel more up to travelling.
- 'How many times will I need to go to the research centre?'
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Most people only need to go once.
The research team invite some participants back for further testing.
This includes inviting people who language problems to come back to see how they may be changing over time.
- 'Can I drive to the appointment and will I be able to park nearby?'
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Yes. Driving costs will be reimbursed by mileage.
There are a number of bays in Queen Square that can be used by Disabled 'Blue Badge' holders.
There are also car parks nearby and parking costs will be reimbursed.