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A variety of resources to help clinicians, families, researchers and professional support personnel, can be found scattered through this site.
These include web sites and contact details; up to date summaries of information; algorithms to help diagnosis etc. Other useful resources are detailed below.
Books
The neuronal ceroid lipofuscinoses (Batten disease). 
2nd Edition.
Editors Mole, Goebel and Williams. Publication 2011. OUP
ISBN-10: 019959001X, ISBN-13: 978-0199590018. 480 pp. hardcover.
Book Review in J Child Neurol. 2011 Oct;26(10):1330
This new edition will be the definitive reference work for the next decade for consultation by clinicians, research scientists, diagnostic laboratories, families affected with the disease and industry planning translational research. The format is similar to the original book, and includes invaluable advice on the genetic, clinical, diagnostic, morphological, care and treatment options available. All chapters have been updated and new chapters have been written by experts in their respective fields.
"This book is the best single source of up-to-date information on neuronal ceroid lipofuscinoses and should be in the library of child neurologists, pediatric neuropathologists, and pediatric geneticists who may deal with patients suffering from these illnesses."
