International meetings focussing on the NCLs are held every two years, alternating between Europe and the Americas, usually the USA.
Other meetings may be relevant to those interested in different aspects of the NCLs.
NCL2025 The 19th International Congress on Neuronal Ceroid Lipofuscinoses will take place in Australia, 28th October to 1st November 2025. See www.ncl2025.org for the latest information. This is organised by Dr Stephanie Hughes of the University of Otago, New Zealand and Dr Ineka Whitema n of BDSRA Australia.