Working Groups

Collaboration is vital in a rare cancer like ES and the EEC facilitates the sharing of knowledge, expertise and resources. Harmonisation of therapies and procedures is important so that all patients receive the best care and so the EEC Executive invited members of the ES community to set up local therapy working groups to address this.

Ewing sarcoma biology

Biological research into Ewing sarcoma is important to the EEC and the biology research community is represented on the EEC Executive Committee by:

• Prof. Didier Surdez, Switzerland
• Prof. Thomas Grünewald, Germany
• Dr Eleni Tomazou, Austria

A biology working group has been established and will meet for the first time in 2024. The group is led by these representatives.

New EWing Therapeutics Strategy Group (NEWTS Group)

The EURO EWING Consortium New EWing Therapeutics Strategy Group (EEC NEWTS Group) aims to increase the access of patients with Ewing sarcoma to relevant early phase clinical trials and to promote drug development.

• Chair - Professor Martin McCabe, The University of Manchester.
• Deputy Chair - Dr Pablo Berlanga, Institut Gustave Roussy.

The EEC NEWTS group is responsible for maintaining a list of early phase clinical trials for ES in Europe that are open to recruitment or about to open. This list will be updated at least twice a year. If you are aware of a trial that is not listed below, please contact the EEC, and the trial will be added during the next update. This version of the list was updated on 30/07/25.

The list of early phase clinical trials has been provided by members of the EEC, and there may be other trials that we are not aware of. By listing these trials, the EEC and UCL is not endorsing or recommending participation in, or referral onto, these trials, and they are unable to take responsibility for how the information in the trials list is used.

If you are a patient, please ask your clinician to contact the chief investigator of the trial to find out whether you are eligible to take part and whether there would be any costs involved.

Local Therapy Groups

In 2021, the EEC Surgery Working Group and the EEC Radiation Oncology Working group were established with members representing many European countries and co-operative groups.

The two working groups will liaise with to ensure that their activities are complementary.

EEC Radiation Oncology Working Group

The EEC Radiation Oncology Working Group is chaired by Beate Timmermann with Line Claude as deputy chair. Membership was drawn from across Europe bringing together a group of radiation oncologists as well as clinical and medical oncologists.

EEC Surgery Working Group

The EEC Surgery Group is chaired by Dimosthenis Andreou and Michael Parry. The group met for the first time in September 2021 and have agreed Terms of Reference.

A first priority was to create alignment between collection of surgical data for two international trials for ES that are currently in development: iEuroEwing and InterEwing 1.

The group agreed on four further projects and these are in progress.

Surgery Working Group Members