EEC Archive

EEC Network Meeting Summer 2025

The 22nd meeting of the EEC was held in June/July 2025 in central London attended by 133 delegates from 24 countries, with many more attending on Zoom. The focus was on improving survival for patients with multi-metastatic Ewing sarcoma and we were privileged to host leading researchers in the field, Poul Sorensen, Oliver Delattre and Patrick Grohar who gave fascinating talks. 

Patient advocates played a key role, leading a session on consent for biological samples and contributing to the discussions over the two days. The EEC was very glad to join forces with the Bone Cancer Research biology-focussed meeting, Advances in Ewing Sarcoma Research, which followed the EEC meeting on 2nd July.

Previous EEC meetings

Other activities

Musculoskeletal Pathology Course 2018

Date: 16th -20th April 2018
Location: Bologna

The Course consisted of a 5-day update on management of bone and soft tissue tumors, with particular emphasis on clinico-pathologic and radiographic correlations including practical studies under microscope. It was addressed to orthopaedic surgeons, oncologists, pathologists, radiologists and basic researchers to improve their knowledge and competence in these pathologies by working in multidisciplinary teams. The format included interactive sessions for questions, case presentations and an early morning interactive session of multiple choice questions reviewing the topics previously discussed. The last day, participants were grouped in multidisciplinary teams to discuss a clinical case. The best teams were awarded a prize.

When Chris Copland met Jeff Toretsky

In October 2017, Chris Copland, EEC patient advocate flew to Washington DC to speak at the SIOP conference about the campaign on age of entry to trials. He made a detour to meet and interview Jeff Toretsky, Georgetown University to find out more about his research into a drug to target Ewing sarcoma cells.

Paper published in JCP by Ornella Gonzato, EEC patient expert

Ornella Gonzato, an EEC patient expert based in Italy has written a paper on the patient perspective on access to innovative drugs and how access should not just be limited to patients with the more common cancers. She discusses the issues, interdependencies and risk-sharing. She summarises that the ‘core driver’ from the patient point of view is that: “When you are faced with a rare cancer, you really can’t wait.” The paper is called ‘The new risk-sharing paradigm in rare cancers: Patient perspective’ and was published in the Journal of Cancer Policy.

Bone tumour course

Date: 9th - 11th October 2017
Location: Leiden, The Netherlands

A multidisciplinary approach to the diagnosis of bone tumours

For more information email boerhaavenascholing@lumc.nl

7th Joint IOR/MSKCC/HSS XXIX Course on Musculoskeletal Pathology

Date: 11th - 15th April 2016
Location: Centro di Ricerca Codivilla-Putti, Istituto Ortopedico Rizzoli, Via di Barbiano 1/10, Bologna – Italy

EEC are supporting Unite2Cure in their campaign to improve access to new drugs for trials in young people

The EURO EWING Consortium supports the Unite2Cure campaign to change European Paediatric Medicine Regulation as there is a need for better access to allow testing of new treatments for rare cancers like Ewing sarcoma, that mainly affect young people. Survival rates have not improved for 25 years and so new drugs and innovative trials are needed to make sure that more people are cured from this rare cancer.

25 September 2015

Patient experts Chris Copland, Ornella Gonzato and Lindsey Bennister gave their perspective on 'how to construct and perform informative bone sarcoma trials if and when a new drug emerges' at the 3rd European Bone Sarcoma Networking Meeting in Vienna, Austria.

24 August 2015 

Our search for patient experts to help with EEC research publicised in the Sarcoma UK Connect newsletter on p14.

27 July 2015

A Q&A article written by Chris Copland (patient/carer expert for the EEC) posted on the Childhood Cancer International (CCI) website.

24 July 2015

Congratulations to the team in France who have now opened Euro Ewing 2012 and recruited their first patient to the trial.

24 - 25 September 2015

EEC Partners are holding a joint workshop with members of ENCCA WP7, EuroSarc and PROVABES at the 3rd European Bone Sarcoma Networking Meeting in Vienna, Austria.

4 March 2015 - First patients recruited to Euro Ewing 2012 trial in Spain

Congratulations to the Spanish investigators and trial team who opened Euro Ewing 2012 at the first site in Spain yesterday and recruited the first two patients today.

23 February 2015 - The Sarcoma UK 2015 grant call is now OPEN

The research allocation for the 2015 grant round is £350k.

DEADLINE FOR APPLICATIONS: 5pm, Thursday 26 March 2015

Large grants are capped at £120,000, small grants in the region of £25,000, up to £50,000

Submissions will be accepted from Principal Investigators and Clinicians working in higher educational institutions or specialist treatment centres in the UK.

More information: http://www.sarcoma.org.uk/researcherinfo

29 January 2015 - First patient recruited to the rEECur trial

Congratulations and thanks for your hard work to all those involved in setting up the study.