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User stories feedback: Yashma Pathak, Cancer Institute: Information Governance and Data Safe Haven

User story feedback on Research Facilitation. "To have a tool like data safe haven, makes data protection so much easier to comply with."

Summary: In June 2017, we provided Information Governance guidance for Yashma Pathak and Rosemary Gale to improve protection of their team's data. They contacted us in August 2018 to seek further advice on data protection compliance and whether they should move the team's data into the Data Safe Haven and update their workflow. We met to discuss this, provided advice on data protection compliance, and described further how the team can carry on their work using the DSH. They applied to use the DSH and attended its induction training in early October.

Feedback

November 2018

Q1. What is the title of your research project?

AML Bank.

Q2. Briefly, what were the queries or requirements you contacted us research facilitators about?

Recommendation on the protecting personal data from patients who have consented for bio banking of samples.

Q3. What suggestions do you have for Research IT Service facilitators to improve on for a very similar request?

Both David and Jack were very helpfully, and guided us through what we needed to do. So i don't have any improvement idea.

Q4. How far do you feel the applications / tools / services / advice we provided you with meet with your requirement?

Both David and Jack were very helpfully, and guided us through what we needed to do. There advise and the use of data safe haven services met our requirements.

Q5. If you were recommended tools or services (Information Governance Advisory, Data Safe Haven, Research Data Storage Service etc.), how effective was our facilitation service in providing you information and getting your accounts? 

Both David and Jack were very helpfully, and guided us through what we needed to do.

Q6. What differences, if any, do the recommended IT tools / services make to your research work compared to before you used such tools / services? 

To have a tool like data safe haven, makes data protection so much easier to comply with.