Prime Study

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The PRIME study (Positive tRansItions through the MEnopause) is a three year NIHR-funded quantitative and qualitative study that will explore, for the first time in the UK, the impact of the menopause on HIV-positive women’s health and wellbeing.

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Why are we doing this study?

  • The number of women accessing HIV care in the UK aged 45-56 (potentially menopausal age) has increased from around 400 in 2000, to over 8000 in 2014
  • Very little is known about how HIV-positive women experience the menopause, and how it affects their physical and psychological well being

What is the PRIME Study?

  • The PRIME study (Positive tRansItions through the MEnopause) is a three year NIHR-funded quantitative and qualitative study
  • It will explore, for the first time in the UK, the impact of the menopause on HIV-positive women’s well being (e.g. sexual functioning, quality of life and mental health) and engagement with HIV care (e.g. adherence to antiretroviral therapy and HIV clinic attendance). 

What are we doing?

Part 1:

  • In Summer 2015 we held group discussions with HIV-negative and HIV-positive women about their experiences of getting older
  • This has given us a better understanding of how women talk about and experience the menopause

Part 2:

  • From Feburary 2016 to July 2017 we surveyed nearly 1000 women living with HIV aged 45-60 
  • We invited women living with HIV attending clinics at 21 NHS hospitals across England to take part
  • We are also conducting in-depth interviews throughout 2017 with some of the women who took part in the survey

Part 3:

  • From January 2016 - April 2016 we hosted creative workshops at Positively UK
  • Workshops were open to women living with HIV of all ages
  • They were facilitated by Dr Katharine Low (Lecturer in Community Performance and Applied Theatre, Royal Central School of Speech and Drama)
  • The workshops focused on using music, creative writing and performance to explore HIV, ageing and being a woman
  • This project closed in April 2016 but we hope to secure funding to continue this work due to the positive response from participants. 

Page last modified on 18 oct 17 09:45