UCL Queen Square Institute of Neurology


Personalised care for people with Parkinson's Disease Study

The PD-Care study is a programme of research aiming to evaluate the effectiveness of the “Live Well with Parkinson’s” facilitated self-management toolkit. This toolkit aims to enable personalised care for community-living people with Parkinson’s, to reduce disability and preventable hospital admissions and to improve quality of life. To date, the toolkit had been developed through co-production and tested in a feasibility study. We are now testing effectiveness through a Randomised Controlled Trial. The links below provide more detail on the study, how you can get involved in the RCT if you are a person with Parkinson's, information on the team involved and the published findings from the research so far.
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About the Study

PD-Care is a five-year study programme, funded by the National Institute for Health Research (NIHR) and sponsored by Royal Free London NHS Foundation Trust. The study aims to develop and evaluate a self-management toolkit to personalise and improve care for people with Parkinson’s Disease (PD) living at home.

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Get Involved

If you have been diagnosed with Parkinson’s and are living at home in the community, we would like to invite you to consider joining our Patient and Public Involvement (PPI) group. 

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Meet the Team

The study is collaboration between two departments within University College London. The Department of Clinical and Movement Neurosciences within UCL Queen Square Institute of Neurology, and Centre for Ageing Population Studies, within the Institute of Epidemiology and Healthcare.  The study is led by the Royal Free Hospital London, who are working with researchers at Kings College London, the Homerton, Luton and Dunstable and East Herts NHS Hospital Trusts, and with people affected by Parkinson’s.



Lay summaries and published papers showing the latest results from the toolkit development, feasibility testing and main randomised controlled trial.


Linked Projects

Many of our team members are working on other projects, that link in with the PD-Care programme of work. Find out more about who they are, what work they are doing and the publications they have produced. 

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This study/project is funded by/supported by the National Institute for Health Research (NIHR) [Programme Grants for Applied Research (Grant Reference Number: RP-PG-1016-20001)]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. 

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