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Care of Late Stage Parkinsonism (CLaSP) Study

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The CLaSP study is a European research study being carried out in 6 different countries looking into the health needs and care received by those with advanced stage Parkinson’s, or Parkinsonism, and their carers. The project aims to improve the care of future patients in this later stage of the condition

 

What has the study involved?

The study has involved a review of physical movements as well as asking some questions about health, needs, memory, circumstances and health care provision, along with previous treatments.

The study is no longer recruiting new participants but is now completing the follow-up assessments of those already enrolled in the study.

 

FAQs

Will this help me?

While you may not directly benefit from this study you will be making a valuable contribution to improving the future care of those with Parkinson’s and their carers.

What if I no longer want to take part?

You are free to withdraw at any time. Your decision to take part or not will not affect the care you are receiving.

If I take part, will my information be kept confidential?

Any information collected during the study will be kept confidential. Assessment and test results will be stored on a secure, confidential, computer network on the University College London (UCL) system, accessible only to members of the research team.

How do the changes in data protection law affect the information I have given you?

Under the General Data Protection Regulation, UCL is the sponsor for this study based in the United Kingdom. We will be using information from medical records in order to undertake this study and will act as the data controller for this study. This means we are responsible for looking after your information and using it properly.

Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

Who do I contact for further information?

Please call, text or email the research teams in your country of residence by clicking on these links below