UCL Queen Square Institute of Neurology


Transverse Myelitis

Medline NLM definition: Inflammation of a transverse portion of the spinal cord characterized by acute or subacute segmental demyelination or necrosis. The condition may occur sporadically, follow an infection or vaccination, or present as a paraneoplastic syndrome (see also ENCEPHALOMYELITIS, ACUTE DISSEMINATED). Clinical manifestations include motor weakness, sensory loss, and incontinence. PubMed Medline search on Transverse Myelitis

Transverse Myelitis: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke information (US site)

Transverse Myelitis: information from NORD, the National Organization for Rare Disorders (US site)

Support Groups

Transverse Myelitis Society (UK)
The Transverse Myelitis Society (TMS) is a not-for-profit self-help organization.  It enables affected families to exchange information, support, and resources; engages in patient advocacy; provides a pen pal service; conducts group meetings; and offers phone support. 

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.