Medline NLM definition: developmental abnormalities of the dorsal median region in the embryo, involving ectoderm, mesoderm, and neuroectoderm in varying degrees. Dysraphism signifies incomplete fusion or malformation of a seam or junction. Spinal dysraphism includes all forms of spina bifida. The open form is called SPINA BIFIDA CYSTICA and the closed form is SPINA BIFIDA OCCULTA.
Shine, the spina bifida and hydrocephalus charity, provides help and support to improve the lives of people living with spina bifida and hydrocephalus, offering details about local support groups and organisations.
Scottish Spina Bifida Association
The SSBA seeks to increase public awareness and understanding of individuals with spina bifida and/or hydrocephalus and allied conditions. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions.
Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.
Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.
NHS Inform: brain, nerves and spinal cord
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.