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Sjogren's Syndrome

Definition of Sjogren's Syndrome from the National Institute of Neurological Disorders and Stroke:
Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the glands  that produce tears and saliva. Sjogren's syndrome is also associated with rheumatic disorders such as rheumatoid arthritis. The hallmark symptoms of the disorder are dry mouth and dry eyes. In addition, Sjogren's syndrome may cause skin, nose, and vaginal dryness, and may affect other organs of the body including the kidneys, blood vessels, lungs, liver, pancreas, and brain

Sjogren's syndrome: information from the NHS website

Sjögren's Syndrome: information from Patient UK website

Sjögren-Larsson Syndrome: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on Sjogren's syndrome

Support Groups

British Sjogren's Syndrome Association
A self-help organisation with more than 2000 members, the BSSA is dedicated to providing mutual support and information to individuals affected by this disabling disease.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.

 

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