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UCL Queen Square Institute of Neurology

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Narcolepsy

NLM Medline Definition: Sleep disorder consisting of attacks of imperative drowsiness and sleep.

Narcolepsy: information from the NHS website

Narcolepsy: information from Patient UK website

Narcolepsy: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Narcolepsy: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on narcolepsy

Support Groups

Narcolepsy Association (UK)
UKAN, the Narcolepsy Association UK is an association of people with narcolepsy, their relatives and others interested in improving their lot. Its registered objects are the benefit, relief and aid of persons suffering from narcolepsy.

National Sleep Foundation (US site)
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving public understanding of sleep and sleep disorders, and by supporting public education, sleep-related research, and advocacy. This website covers all aspects of sleep disorders including narcolepsy.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.