UCL Queen Square Institute of Neurology


Multi-infarct dementia


Medline NLM definition: an organic mental disorder with loss of intellectual abilities of sufficient severity to interfere with social or occupational functioning. The deficit is multifaceted and involves memory, judgment, and abstract thought. Behavioral and personality changes also occur.

Multi-infarct dementia: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke information (US site)

Dementia with Lewy Bodies: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke information (US site)

Lewy body dementia: information from the NHS website

Lewy body dementia: information from Patient UK website

PubMed Medline search on Lewy Body Dementia

Support Groups

Alzheimer's Society
This is the leading dementia charity. Its website contains essential information on dementia and Alzheimer's disease, including how to live well with the disease and how to find help near you. Offers information and advice to people with Alzheimer's disease and their carers.

Alzheimer's Research UK
Carries out dementia research, but it also answers questions about dementia and dementia research – including how you and your loved ones can get involved. The charity's infoline can provide help and guidance.

Alzheimer Scotland-Action on Dementia
Aims to improve public policies for people with dementia and their carers in Scotland and to provide and secure the provision of high quality services both for people with dementia and for their carers in Scotland.

Dementia UK
Dementia UK is a national charity that aims to improve the quality of life for people with dementia. It offers advice and support to families who are living with dementia through its Admiral Nurses, who are registered nurses and dementia experts. Dementia UK and its Admiral Nurses also provide training for professionals who work with people with dementia.

CANDID (Counselling and Diagnosis in Dementia)
National Hospital for Neurology and Neurosurgery, Queen Square, London, WC1N 3BG, England
Tel: 020 7829 8772
Fax: 020 7209 0182
Email: candid@dementia.ion.ucl.ac.uk
Offers support, information, advice and education for anyone caring for younger people with dementia. Has a helpline and an excellent internet web site. The web site includes a virtual carer support group; CANDID young onset dementia resources database; CANDID e-mail list (which promotes sharing of information between carers and also information professionals); information leaflets to download; dementia resource centre; access to the Pick's disease support group; announcements and events.

The Carers Trust
If you are looking after someone with dementia, it's important that you know how to get help and support for yourself as well. This is a good place to start looking for information and advice on how to get help and support, and even a break from caring

The London Centre for Dementia Care
This organisation was established in 1998 and is hosted by University College London.

The Lewy Body Society
The Lewy Body Society is a registered charity whose purpose is to fund research into Dementia with Lewy Bodies (DLB).

PSPA (The Progressive Supranuclear Palsy Association)
PSPA is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure.

Western Alzheimer Foundation (Irish site)
Promotes awareness through consultation and support group meetings. Gives practical help with a home support service.

Alzheimer's Association
This USA based charity gives information and assistance on issues related to Alzheimer's disease. Website includes links to regional "chapters" for the USA. Funds research and has an extensive information service.

Alzheimer Society of Canada
National society web page with the latest information on Alzheimer disease, care, research and Society programs to help Canadians affected by Alzheimer disease. Links to local and international organisations.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.

Social media for people with dementia and their carers

Online forums are a great way to share your experiences of caring for someone with dementia, as well as reading what others are going through. If there's a particular issue you are struggling with, the chances are that someone else has had the same experience.

Talking Point is the Alzheimer's Society's forum. It has people with dementia sharing their information and advice, and supporting each other.

Carers can also turn to online communities on the Carers UK forum.


Dementia books on prescription

Reading Well Books on Prescription for dementia offers support for people diagnosed with dementia and their relatives and carers. GPs and other health professionals can recommend titles from a list of 25 books on dementia. The books are available for anyone to borrow for free from their local library.

This service is also available to people living without a formal diagnosis, who may be worrying about symptoms of dementia.

Read more about the Reading Well Books on Prescription for dementia titles.