Medline NLM definition: an organic mental disorder with loss of intellectual abilities of sufficient severity to interfere with social or occupational functioning. The deficit is multifaceted and involves memory, judgment, and abstract thought. Behavioral and personality changes also occur.
Dementia: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site).
Dementia: information from Patient UK website.
Dementia: information from NHS Choices.
National Institute on Aging: US site from National Institute of Health. Aimed at older adults.
Posterior cortical atrophy: information from the Alzheimer's Disease Society.
The Many Faces of Dementia This free online course was developed by Dr Tim Shakespeare of UCL's Dementia Research Centre. The course provides a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses of dementia.
PubMed Medline search on Lewy Body Dementia.
This is the leading dementia charity. Its website contains essential information on dementia and Alzheimer's disease, including how to live well with the disease and how to find help near you. Offers information and advice to people with Alzheimer's disease and their carers.
Alzheimer's Research UK
Carries out dementia research, but it also answers questions about dementia and dementia research – including how you and your loved ones can get involved. The charity's infoline can provide help and guidance.
Rare Dementia Support service.
Rare Dementia Support is a unique, world-leading service providing support, guidance and information to everyone affected by or at risk of a rare dementia, in a space of mutual respect and community. It builds on the pioneering research of the UCL Dementia Research Centre (DRC) and its expertise in young-onset, inherited and unusual dementias. With the generous support of the Selfridges Group Foundation and expertise from their digital and creative teams, they have designed a new, innovative online support platform. People living with rare dementias informed every step of the development process: from website layout, accessibility and content to design, fonts and colours. Rare Dementia Support runs specialist support services for individuals living with, or affected by, one of six rare dementia diagnoses:
frontotemporal dementia (FTD)
posterior cortical atrophy (PCA)
primary progressive aphasia (PPA)
familial Alzheimer’s disease (FAD)
familial frontotemporal dementia (fFTD)
Lewy body dementia (LBD)
They provide regular support group meetings, newsletters, telephone contact networks, websites and access to information and advice for people affected by these five rare dementia conditions
Alzheimer Scotland-Action on Dementia
Aims to improve public policies for people with dementia and their carers in Scotland and to provide and secure the provision of high quality services both for people with dementia and for their carers in Scotland.
Dementia UK is a national charity that aims to improve the quality of life for people with dementia. It offers advice and support to families who are living with dementia through its Admiral Nurses, who are registered nurses and dementia experts. Dementia UK and its Admiral Nurses also provide training for professionals who work with people with dementia.
CANDID (Counselling and Diagnosis in Dementia)
National Hospital for Neurology and Neurosurgery, Queen Square, London, WC1N 3BG, England
Tel: 020 7829 8772
Fax: 020 7209 0182
Offers support, information, advice and education for anyone caring for younger people with dementia. Has a helpline and an excellent internet web site. The web site includes a virtual carer support group; CANDID young onset dementia resources database; CANDID e-mail list (which promotes sharing of information between carers and also information professionals); information leaflets to download; dementia resource centre; access to the Pick's disease support group; announcements and events.
The London Centre for Dementia Care
This organisation was established in 1998 and is hosted by University College London.
The Carers Trust
If you are looking after someone with dementia, it's important that you know how to get help and support for yourself as well. This is a good place to start looking for information and advice on how to get help and support, and even a break from caring.
The Lewy Body Society
The Lewy Body Society was founded in 2006 in order to raise awareness and educate the public, the medical profession and those in health-care decision-making positions about Dementia with Lewy bodies.
The Progressive Supranuclear Palsy Association
National charity offering support and information to people living with PSP and CBD, while supporting research into treatments and ultimately a cure.
Western Alzheimer Foundation
Promotes awareness through consultation and support group meetings. Gives practical help with a home support service. (Irish site)
This USA based charity gives information and assistance on issues related to Alzheimer's disease. Website includes links to regional "chapters" for the USA. Funds research and has an extensive information service. (US site)
Alzheimer Society of Canada
National society web page with the latest information on Alzheimer disease, care, research and Society programs to help Canadians affected by Alzheimer disease. Links to local and international organisations. (Canadian site)
A national charity for carers, providing information and advice from benefits to practical support.
Has advice on a range of topics, including advance care planning, benefits and choosing a care home, as well as information on local activities and services for those with dementia. It runs a free national helpline.
NICE (National Institute for Health and Care Excellence)
This organisation supports people with dementia and their carers in health and social care.
NHS website Social Care and Support Guide
If you or someone you know needs help with day-to-day living because of illness or disability, this website explains your options and where you can get support.
Music for dementia
This is a great website for anyone who works with or cares for people living with demntia. If you are running a dementia friendly music event or are looking for one, they're all here, as well as suggestions about ways of engaging with music. To ensure every person living with dementia has access to music, they are taking the lead by creating a taskforce of stakeholders from across the music and dementia fields to embed music into dementia care pathways.
Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.
NHS Inform: brain, nerves and spinal cord
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.
Dementia books on prescription
Reading Well Books on Prescription for dementia offers support for people diagnosed with dementia and their relatives and carers. GPs and other health professionals can recommend titles from a list of 25 books on dementia. The books are available for anyone to borrow for free from their local library.
This service is also available to people living without a formal diagnosis, who may be worrying about symptoms of dementia.
Read more about the Reading Well Books on Prescription for dementia titles.