UCL Queen Square Institute of Neurology



Medline NLM definition: A chronic, progressive, uniformly fatal nervous system disorder characterized by a long incubation period and transmissible to subhuman primates. It is found among the Fore and neighboring peoples of New Guinea. It is thought to be associated with cannibalism. Pathologically, the brain shows the changes of the spongiform encephalopathies: neuronal loss, astrogliosis, and status spongiosus; amyloid plaques are also present in about two thirds of the cases. (Dorland, 27th ed)

Kuru: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

PubMed Medline search on Kuru

Support Groups

No specific support groups listed.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.