UCL Queen Square Institute of Neurology


Guillain Barre Syndrome

Medline NLM definition: An acute inflammatory autoimmune neuritis caused by T cell- mediated cellular immune response directed towards peripheral myelin. Demyelination occurs in peripheral nerves and nerve roots. The process is often preceded by a viral or bacterial infection, surgery, immunization, lymphoma, or exposure to toxins. Common clinical manifestations include progressive weakness, loss of sensation, and loss of deep tendon reflexes. Weakness of respiratory muscles and autonomic dysfunction may occur. (From Adams et al., Principles of Neurology, 6th ed, pp1312-1314)

Medline plus Health Information on Guillain-Barré Syndrome

Guillain-Barré Syndrome: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Guillain-Barré syndrome: information from the NHS website

Guillain-Barré syndrome: information from NORD, the National Organization for Rare Disorders (US site)

Guillain-Barré syndrome: information from Patient UK website 

PubMed Medline search on Guillain-Barré Syndrome

Support Groups

gain (was the Guillain-Barré Syndrome Support Group)

A registered charity based in the United Kingdom that provides information and support to those affected by Guillain-Barré syndrome, chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) and other associated inflammatory neuropathies, and funds research into these illnesses.

For more detailed information, please see the Guillain-Barré Syndrome page on the Contact a Family (CAF) website

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.