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UCL Queen Square Institute of Neurology

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Fibromyalgia

Medline NLM definition: A common nonarticular rheumatic syndrome characterized generally by chronic musculoskeletal pain and diagnosed chiefly by the presence of multiple tender points (tender muscular nodules) at characteristic locations. It is often associated with general symptoms, such as sleep disturbances, fatigue, stiffness, swelling, chronic headaches, and pain in neck and shoulders. The average duration is 5 years. Most patients are women aged 20 to 50 years. The cause is unknown and the treatment is not specific.

Fibromyalgia: information from the NHS website

Fibromyalgia: information from Patient UK website

PubMed Medline search on Fibromyalgia

Support Groups

UKfibromyalgia
This web site aims to bring together information and resources to make the pain more bearable, whether you are a sufferer yourself, or whether you care for a sufferer.

Fibromyalgia Action UK
A national charity raising awareness of fibromyalgia in the UK.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.

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