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UCL Queen Square Institute of Neurology

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Erythromelalgia

Medline NLM definition: Disease marked by paroxysmal, bilateral vasodilatation, particularly of the extremities, with burning pain, and increased skin temperature and redness.

Erythromelalgia: information from the NHS website

Erythromelalgia: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on Erythromelalgia
 

Support Groups

The Erythromelalgia Association (TEA) - US site
TEA provides education, awareness, and community through their website, member services program, newsletter, social media presence, and networking programs.  TEA promotes research through relationships with academic researchers, clinicians, and pharmaceutical companies with an interest in EM. TEA also raises funds to support erythrolelalgia research.

Foundation for Peripheral Neuropathy (US site)
This charity foundation aims to be the premier resource of information for patients, their families and healthcare providers, accelerating a cure for peripheral neuropathies, funding the collaborative efforts of leading scientists and raising awareness of peripheral neuropathy.

Pain Concern
This charity works to support and inform people with pain and those who care for them, whether family, friends or healthcare professionals.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.


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