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UCL Queen Square Institute of Neurology

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Ependymoma

Medline NLM definition for Brain tumours: neoplasms of the part of the central nervous system contained within the cranium.

Brain Tumour Service (Neuro-Oncology): this new website includes information about the different types of brain tumour treated at UCLH, a Meet the Team section and stories from patients who have been treated here. The site was developed and tested with patients. The new website explains the treatments for the different types of brain tumours for both patients, carers and professionals and also what each member of the Hospital team does. 

Brain tumours: information from the NHS website

Cancer of the Brain and Brain Tumours: information from Patient UK website

Brain and Spinal Cord Tumors: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

PubMed Medline search on Brain Neoplasms
PubMed Medline search on haemangioblastoma
PubMed Medline search on medulloblastoma
PubMed Medline search on meningioma

 

Support Groups

Alison Fracella Research Trust (AFRT)
A registered UK charity, formed in 2005 specifically for the funding of research, treatment and elimination of a particular brain tumour known as Glioblastoma.

Brain Tumour Charity
The Brain Tumour Charity is the UK’s largest dedicated brain tumour charity, committed to fighting brain tumours on all fronts.

SDBTT AstroFund
UK charity focusing on low-grade gliomas.

Macmillan Cancer Support
Macmillan Cancer Support improves the lives of people affected by cancer.  The website has many pages of up-to-date cancer information, practical advice and support for cancer patients, their families and carers. 

Cancer Research Campaign (UK)
The Cancer Research Campaign (CRC) supports a comprehensive programme of research in institutes, hospitals, universities and medical schools throughout Britain and Northern Ireland.

BANA (The British Acoustic Neuroma Association)
The website has been designed and developed by people affected by Acoustic Neuroma using information and data gathered from traceable sources.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories. .

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.

 

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