UCL Queen Square Institute of Neurology



Medline NLM definition: a polymyositis occurring in association with inflammatory skin changes, a purplish rash on the upper eyelids with edema of the lids and surrounding tissue, and an erythematous rash on the forehead, neck, shoulders, trunk, and arms.

Dermatomyositis and polymyositis: information from Patient UK website

Dermatomyositis and polymyositis: information from the NHS website

Dermatomyositis: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Dermatomyositis: information from NORD, the National Organization for Rare Disorders (US site)

PubMed Medline search on Dermatomyositis

Support Groups

Myositis Support Group
The Charity provides information and practical advice and research into Dermatomyositis (DM), Polymyositis (PM),  Juvenile Dermatomyositis (JDMS), Juvenile Polymyositis (JPM) and Inclusion Body Myositis (IBM).

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.