UCL Queen Square Institute of Neurology


Complex Regional Pain Syndrome

Complex Regional Pain Syndrome (CRPS): factsheet from NINDS, the National Institute of Neurological Disorders and Stroke information (US site)

Complex Regional Pain Syndrome: information from Patient UK website

Complex Regional Pain Syndrome: information from the NHS website

Support Groups

Burning Nights
This charity is specifically aimed at raising awareness about CRPS amongst the public and medical professions but also supporting all those affected by the condition.

UK's first CRPS charity, this is a patient led organisation focused on helping people with CRPS to live the best lives they can, by providing a supportive environment in which people can find out about CRPS and get in touch with a community of people who know what they are going through.

Find out about the experience of living with chronic pain by seeing and hearing people share their personal stories on film.

Pain Concern
Produce information on pain using a variety of media platforms, provide support to people with pain and those who care for them, and raise awareness about pain, campaigning to improve the provision of pain management services. They also offer a helpline.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.