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Ataxia

Medline NLM definition: Impairment of the ability to perform smoothly coordinated voluntary movements. This condition may affect the limbs, trunk, eyes, pharnyx, larnyx, and other structures. Ataxia may result from impaired sensory or motor  function. Sensory ataxia may result from posterior column injury or  PERIPHERAL NERVE DISEASES. Motor ataxia may be associated with  CEREBELLAR DISEASES; CEREBRAL CORTEX diseases; THALAMIC DISEASES; BASAL GANGLIA DISEASES; injury to the RED NUCLEUS; and other conditions.

Ataxia: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Ataxia telangiectasia: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Friedreich's Ataxia: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Friedreich's Ataxia: information from NORD, the National Organization for Rare Disorders (US site)

Ataxias and Cerebellar or Spinocerebellar Degeneration: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)

Ataxia: information from the NHS website

PubMed Medline search on Ataxia
PubMed Medline
search on Friedreich's Ataxia

Support Groups

The Ataxia-Telangiectasia Society
A-T Society is a self help group of families who have children with A-T. They provide newsletters, family meetings, a trained counsellor and a help-line.

Ataxia UK
UK charity for people with ataxia, their families and carers. 

Metabolic Support UK
Metabolic Support UK (formerly known as Climb - Children Living with Inherited Metabolic Diseases) are the leading patient organisation for Inherited Metabolic Disorders supporting thousands of patients worldwide.

National Ataxia Foundation (US site)
USA based organisation for people with ataxia

International Network of Ataxia Friends
Internaf is an international e-mail based forum to exchange information and support for those who are diagnosed with ataxia, their families and friends as well as anyone who has an interest in these disorders. See web page for regional groups.

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.

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