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Medline NLM term definition: A group of congenital malformations involving the brainstem, cerebellum, upper spinal cord, and surrounding bony structures. Type II is the most common, and features compression of the medulla and cerebellar tonsils into the upper cervical spinal canal and an associated MENINGOMYELOCELE. Type I features similar, but less severe malformations and is without an associated meningomyelocele. Type III has the features of type II with an additional herniation of the entire cerebellum through the bony defect involving the foramen magnum, forming an ENCEPHALOCELE. Type IV is a form a cerebellar hypoplasia. Clinical manifestations of types I-III include TORTICOLLIS; opisthotonus;HEADACHE; VERTIGO; VOCAL CORD PARALYSIS; APNEA; NYSTAGMUS; swallowing difficulties; and ATAXIA.
Chiari Malformation: factsheet from NINDS, the National Institute of Neurological Disorders and Stroke (US site)
Chiari Malformation: information from the NHS website
Arnold Chiari Malformation: information from Patient UK website
Chiari Malformation: information from NORD, the National Organization for Rare Disorders (US site)
PubMed Medline search on Arnold Chiari Malformation
Support Groups
Ann Conroy Trust
Supporting research and people with syringomyelia and its associated conditions such as the Arnold Chiari Malformation.
Chiari & Syringomyelia Foundation (US site)
This non-profit organization has the goal of raising awareness and finding a cure for Chiari malfromation, syringomyelia and related disorders.
Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.
Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.
NHS Inform: brain, nerves and spinal cord
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.