UCL Queen Square Institute of Neurology



Amyloidosis: information from the NHS website

Amyloidosis: information from Patient UK

Support Groups

The National Amyloidosis Centre
The National Amyloidosis Centre (the NAC) is part of the University College London (UCL) Division of Medicine and is situated at the Royal Free Hospital in Hampstead, London. The NAC has been at the cutting edge of treatment and research into all aspects of amyloidosis for over 25 years.  Their website has been developed as a public service to provide patients and their family and friends with a comprehensive, accurate and up to date resource on all types of amyloidosis.

Myeloma UK
Registered as a charity in 1997, Myeloma UK, a registered charity, is the only organisation in the UK focused on myeloma

Brain and Spine Foundation
Information on living with a neurological condition and on diagnosis. There are publications and resources. The useful glossary of neurological conditions (under 'Information and support') includes links to some other organisations as well as to Brain and Spine Foundation information.

Healthtalk: nerves and brain
Personal experiences of people living with various neurological conditions.

Neurological Alliance
Collective voice for 80 organisations, including stroke and brain injury. Organisations are listed at https://www.neural.org.uk/our-members/, a good place to start if looking for information on those conditions. Site also includes information about living with a neurological condition, a glossary, and information about onset and diagnosis as well as a small set of real life stories.

NHS Inform: brain, nerves and spinal cord 
NHS inform is Scotland's national health information service, with the aim of providing the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for.