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For the Public
For more information on data linkage and how this may affect you, see our Frequently Asked Questions page here.
For a clear summary describing what health research is, and how health data are used in research, see a summary published by the National Institute for Health Research (NIHR) here.
The NIHR have also developed some useful resources for patients and the public, including tips and guides for getting involved in research at http://www.nihr.ac.uk/get-involved/Resources-for-patients-and-the-public.htm.
Research Involvement and Engagement is a new open access interdisciplinary, health and social care journal focussing on patient and wider involvement and engagement in research, at all stages. The journal is co-produced by all key stakeholders, including patients, academics, policy makers and service users. For more information about the journal, see www.researchinvolvement.com.
For People Engaged in Research
A range of practical toolkits about running your own engagement projects can be found on the UCL web pages: http://www.ucl.ac.uk/public-engagement/evaluation/toolkits.
The National Institute for Health Research (NIHR) have developed some excellent resources for researchers, see: http://www.nihr.ac.uk/get-involved/Resources-for-researchers.htm.
INVOLVE is funded by the NIHR to support public involvement in NHS, public health and social care research. The INVOLVE Resource centre contains links to all INVOLVE publications, databases and other online resources on public involvement in research and provides other useful information for researchers: http://www.invo.org.uk/find-out-more/information-for-researchers/.
The National Coordinating Centre for Public Engagement (NCCPE) was established to support Universities across the UK to increase the quantity and quality of their public engagement activity. Practical advice and resources are available on their website at https://www.publicengagement.ac.uk/.
For more advice on how to involve patients and the public in your research, please contact Natalie Fitzpatrick by email at n.fitzpatrick@ucl.ac.uk.