New Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research

A new paper, co-authored by IHI reseacher Natalie Fitzpatrick, has just been published in the International Journal of Populations Health Science...

This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.

Mhairi Aitken Mary P Tully Carol Porteous Simon Denegri Sarah Cunningham-Burley Natalie Banner Corri Black Michael Burgess Lynsey Cross Johannes van Delden Elizabeth FordSarah Fox Natalie Fitzpatrick Kay Gallacher Catharine Goddard Lamiece Hassan Ron Jamieson Kerina H Jones Minna Kaarakainen Fiona Lugg-Widger Kimberlyn McGrail Anne McKenzie Rosalyn Moran Madeleine J Murtagh Malcolm Oswald Alison Paprica Nicola Perrin Emma Victoria Richards John Rouse Joanne Webb Donald J Willison. Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research. IJPDS 2019; 4(1). Published online: 12 Febraury 2019. DOI: https://doi.org/10.23889/ijpds.v4i1.586