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Positive Voices: The national survey of people living with HIV

Project Summary

Positive Voices is a national HIV patient survey developed by Public Health England in partnership with University College London and Imperial College London. 

The survey aims to collect population-level information from people living with HIV which will provide valuable insights into the issues that most affect the health and lives of people living with HIV.

The results of the survey will be used to monitor and improve existing HIV services and policies and support the provision of new services.

Key Project Information

Dates: 2014 – ongoing (to be repeated in 2021)

Status: current

UCL lead/Principal Investigator: Dr Richard Gilson

Lead organisation: Public Health England

Project lead: Meaghan Kall

Partners: Imperial College London

Location: UK

Funding: Department of Health & Gilead Sciences Inc. 

Contact: positive.voices@phe.gov.uk

Research Team

Meaghan Kall

Dr Richard Gilson

Dr Maryam Shahmanesh

Dr Valerie Delpech

Prof Helen Ward 

 Publications

Changing Perceptions: Talking about HIV and Attitudes. A community-led report by Positively UK, National AIDS Trust, and Public Health England.

Changing Perceptions: Talking about HIV and Our Needs. A community-led report by Positively UK, National AIDS Trust, and Public Health England.

Changing Perceptions: Talking about HIV and our relationships. A community-led report by Positively UK, National AIDS Trust, and Public Health England.

Pufall E, Kall M, Shahmanesh M, Nardone A, Gilson R, Delpech V, Ward H. Sexualized drug use ('chemsex') and high-risk sexual behaviours in HIV-positive men who have sex with men. HIV Med. 2018 Apr;19(4):261-270

Kelly C et al. Health-related quality of life of adults living with HIV in England and Wales: a utility analysis of EQ-5D-5L compared to the general population. Fourth Joint BHIVA & BASHH Conference, Edinburgh, April 2018, abstract P284.

Auzenbergs M, Kall M, Delpech V. Development of a nationally representative HIV patient survey: Experiences from the Positive Voices survey in the United Kingdom. AIDS 2018 conference.

Kall M, Shahmanesh M, Nardone A, Gilson R, Delpech V on behalf of the Positive Voices Study Group. “Positive Voices” a RCT pilot survey of the behaviour and healthcare needs of people with HIV: study methods and respondent characteristics. P135. BHIVA conference. Brighton, UK; 21–24 April 2015.

Kall M, Shahmanesh M, Nardone A, Gilson R, Delpech V. Development of Positive Voices: the national survey of people living with HIV. P227.  Third Joint BHIVA & BASHH Conference. Liverpool, UK; 1–4 April 2014.

Positive Voices 2017 survey results

Presentations

Kall M. Loneliness and Isolation in people living with HIV.  HIV Scotland. 11 October 2019.

Kall M, Patient experience within NHS HIV specialist services: Results from the Positive Voices pilot survey. BHIVA 2018 Conference. Abstract O5.

Kall M, Delpech V, Gilson R, Shahmanesh M, Nardone A. Patient experience with NHS HIV specialist services: results from the Positive Voices pilot survey. BHIVA Spring Conference 2015.

Resources