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NIHR HPRU holds community workshop on PPIE evaluation

2 April 2025

A workshop co-produced by researchers from UCL’s Institute for Global Health and three individuals with lived experience focused on evaluating patient/public involvement.

Hand drawn graphic with multiple images titled 'Measuring the impact of patient/public involvement'

Hosted at a community venue in Islington, the event was conducted by the National Institute for Health Research (NIHR) Health Protection Research Unit (HPRU) in Blood Borne and Sexually Transmitted Infections (BBSTIs) at UCL, with significant contributions from three people with lived experience.

The workshop aimed to shape the evaluation measures and outcomes for PPIE, co-produce a map of key stakeholders, and explore engagement strategies for the HPRU. Additionally, participants reviewed and critiqued existing PPIE evaluation frameworks.

Public contributors from the HPRU Community Panel helped co-produce the agenda and activities, which included a World Cafe to discuss various PPIE evaluation frameworks and mapping stakeholders to a power/interest matrix. The Co-Production Collective at UCL supported the project by evaluating the co-production approach. The event was well attended by 24 individuals, including representatives from UKHSA, UCL, community organizations, charities, research funders, and people with lived experience.

Attendees actively participated throughout the day, leaving pledges on a 'pledge tree' of actions they planned to take post-workshop. Feedback was overwhelmingly positive, with 100% of respondents (n=11) expressing satisfaction with the event. Highlights included collaborative work, networking opportunities, and engaging activities, particularly the World Cafe.

The outputs from the workshop will guide the new HPRU (HPRU3) in BBSTIs, launching on April 1, 2025. The event inspired attendees and provided a solid foundation for future PPIE initiatives.

Quotes from participants:

  • "The open and inclusive environment allowed for valuable conversations, and I left feeling inspired and motivated to take action."
  • "The best bits for me were definitely the engaged way that the workshop was organised, interaction, good use of activities."
  • "Great to meet you all and see co-creation principles in action!"

This workshop marks a significant step forward in PPIE evaluation and engagement, setting the stage for impactful future work in the field.

Reports and outputs will be available shortly.

This work was made possible by funding from the 2024 NIHR Infastructure/School Pre-Application Support Fund.

For further enquiries, please contact vasiliki.papageorgiou@ucl.ac.uk.

Links

NIHR Health Protection Research Unit in Blood Borne and Sexually Transmitted Infections at UCL