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Institute of Epidemiology & Health Care

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Patient and Public Involvement and Engagement (PPIE)

Patient involvement is central to our department. It guides our strategy, what we choose to research and how we teach.

PPIE & Covid-19

**Please note that due to Covid-19 all our Patient and Public Involvement and Engagement activities will take place digitally or by phone for the foreseeable future**

In light of the Covid-19 pandemic and current government guidance, all PPIE activities carried out by our department will now be done digitally (e.g. videoconferencing through skype or zoom) or by telephone for the foreseeable future. If you are currently working on a project, the researchers will be in touch with you to work out the best way for you both to communicate. We will ensure you are not left out of pocket when you contribute (e.g. we will ring you rather than you phoning us) and the time you spend on projects will be reimbursed in the same way as before. We can also provide you with (remote) support if needed to help you set up videoconferencing software. Please get in touch if you have any questions. We hope you are all staying well.

PCPH Patient and Public Involvement 

We are committed to engaging with the public to ensure our research reflects patient priorities. We actively invest in patient and public involvement, with a nominated senior lead, administrative support and financial resources. Our patient and public involvement is led by Elizabeth Murray, Rachael Frost and administrator Connie Chase.

We have three levels of patient involvement.

Experts by Experience

This group is comprised of around 40 people from different backgrounds, ages, genders and ethnicities. Using their experience of primary care, this group ensures research addresses questions that are meaningful to patients.

Our Experts by Experience can sign up to different tasks that we need patient involvement for, such as input into teaching medical students or feedback on PhD research.

If you would like to find out more about our experts by experience group contact Connie Chase, email c.chase@ucl.ac.uk.

Patient advisory group

This group is currently made up of four people and meets regularly to help determine PCPH strategy. It is patient-led with academic support and the group has input into the strategy for research, teaching and patient and public involvement in the department. We were awarded a Beacon Bursary to fund this group for the first year. Most members of this group have considerable experience with patient involvement or the voluntary sector.

PPI on specific research projects

Some PPI members have been involved with researchers or research groups for a number of years and are involved with projects on specific topics of interest (e.g. dementia). Some of these are also members of the Experts by Experience group.