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Institute of Epidemiology & Health Care

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Project Swallow

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Principle Investigator: Henry Goodfellow

Chief investigator: Prof Elizabeth Murray

Start date: August 2017

Finish date: On going

Main aim:

To create digital health intervention (DHI) to improve the care of people affected by Oesophageal Cancer.

The DHI includes:

  • a smart phone app to support patients
  • a website with patient list to support cancer nurses.

Background:

Oesophgeal cancer is consider one of the cancers where patients have many needs and concerns as they go through treatment. We want to help support patients by empowering them using information personalized to their needs and improving communication with their care team.

Study Methods:

Mixed methods, multi-disciplinary co-design approach divided into 4 main work packages.

  • Summarising the evidence base with a literature review
  • Determining using needs using qualitative methodology.
  • Designing the Digital health interventions using the principles of agile participatory design.
  • Refining the protype with a small pilot in the clinical setting.

Our Team:

Researchers: Dr Goodfellow and Prof Murray at the eHealth unit in the department of primary care and population health

Patient and Public Involvement (PPI): We have two patients affected by cancer on our team. 

Commercial Company: Living With who have expertise in designing apps for the NHS. 

Healthcare professionals: From University College London Hospitals (UCLH)

Funded by:

Macmillan cancer charity

Contact details:

If you are a patient and wish to take part in the study or would like more information, please contact us on:

projectswallow@ucl.ac.uk

                                          or 

020 7794 0500, ext: 31498 from Monday to Friday, 09.00-17.00.

Project links and documents:

Patient information sheets (embedded in link)

Ethics approval:

This project has been granted ethical approval by NHS ethics team

Current eHealth webite: https://www.ucl.ac.uk/epidemiology-health-care/research/primary-care-and...