Cognitive Disorders Clinic
This is a specialist clinic for people with decline in memory, language, or other problems in brain function. Referrals are accepted from all over the country, often after having been seen in a local service.
People are seen for diagnosis, initial management of symptoms, advice on support, and information about research. The clinics have close links with the Dementia Research Centre and patients have the opportunity to volunteer for studies if they wish to.
CANDID (Counselling And Diagnosis In Dementia)
CANDID is a nurse-led information and advice service, offering advice on how to access information on legal and financial matters, and the role of statutory and voluntary support services.The CANDID service, run by the Consultant Nurse and Clinical Nurse Specialist, is available to patients and families registered with the NHS Specialist Cognitive Disorders Clinic at the National Hospital, and associated healthcare professionals. It aims to enhance mutual understanding between patients and doctors through:
- face to face consultations at clinic appointments
- a telephone helpline service before first appointment, between appointments and following discharge to local services
- a medication clinic
At the Dementia Research Centre, we’re involved in a number of support groups that provide information and support to people with rare forms of dementia, their families, friends and healthcare professionals. We’re in the process of bringing these groups together under one banner – Rare Dementia Support – to extend our reach and give us a stronger voice for fundraising and advocacy, ensuring their continued expansion.
The five rare dementia diagnoses that we support are frontotemporal dementia (FTD), posterior cortical atrophy (PCA), primary progressive aphasia (PPA), familial Alzheimer’s disease (FAD) & familial frontotemporal dementia (fFTD).
Our vision is for all individuals with or at risk of one of these rarer forms of dementia to have access to specialist information, support and contact with others affected by similar conditions. Rare Dementia Support is a fund held by The National Brain Appeal (registered charity number: 290173).
Read more about the importance of dementia support groups in this article (pdf) by specialist nurse and support groups coordinator Jill Walton.
For more information about the groups, please see the links below.