Meetings and contact information

We coordinate meetings in London where members of the support group can share their experiences of Posterior Cortical Atrophy, and attend talks on relevant topics.

All those planning to attend a meeting are asked to confirm their attendance with Jill Walton or Sebastian Crutch. Anyone interested in attending a meeting for the first time is asked to contact Jill or Sebastian to discuss the suitability of the group for their needs.

We also facilitate regional meetings, assisted by members of the support group.

Minutes from each meeting can be found in our newsletters. For some of our meetings, we also have video recordings.

Please note that you assume full responsibility and risk when attending support group meetings, and also in the use of the information contained on our website, in our newsletters and at support group meetings.

Meetings calendar

Future Meetings at UCL

10th June, 2016

This PCA Support Group meeting will be taking place in the Wilkins Haldane Room (please see map for directions - opens new window) on the 10th June, 2016.

Speakers include Dr Becky Gould & Aida Suarez-Gonzalez.

7th July, 2016

The venue for this meeting is the front Events Quadrangle Venue on the UCL Gower St site, WC1E 6BT (please see map for directions - opens new window). The meeting is scheduled from 11am -2pm, with coffee available from 10.30am and lunch provided.

The theme of the meeting will be Medical –Legal Issues. We will be joined by James Mabey, a solicitor specialising in Private Client law and experienced in the preparation of Lasting Powers of Attorney and Advance Statements. He advises on all aspects of their use, benefits, registration and other issues that often arise.

James will give a presentation to help dispel some myths and outline the benefits of making these documents and the processes involved.

Past Meetings at UCL

2nd February, 2016

Full support group meeting

The theme of this meeting was ‘Creativity in PCA’ and we welcomed a range of presenters to share details of their work:

Simon Ball a film maker/animator who will be working on the ‘Am I the right way up?’ balance project here at UCL

Susanna Howard joined us to talk further about her poetry and performance approach (her work also featured in our recent newsletter).

Pam Turpin spoke about her current study which is looking at the environmental challenges faced by people living with PCA and their caregivers.

Amelia Carton, a research assistant at the Dementia Research Centre here at UCL, described the recent ‘Profiles in Paint’ project where people with PCA and other rare dementia diagnoses produced a still life painting from the same objects, in collaboration with the visual artist Charlie Harrison.

Yeoryia Manolopoulou and Niall McLaughlin discussed their forthcoming project at the Venice Architecture Biennale 2016.

Harry Macqueen spoke about his upcoming film projects.

18th November, 2015

Joint Carers' Meeting

Dr Liz Sampson who is a Senior Clinical Lecturer at the Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London joined us to share her expert knowledge on palliative and end of life care in dementia.

The recording of this meeting will be available soon on our website.

16th October, 2015

Full support group meeting

We welcomed 2 guest speakers at this meeting; Dr Chris lane who spoke to us about ‘Medications Commonly Prescribed in PCA’ and Professor Robert Howard who presented to us a presentation entitled ‘The Psychiatry of PCA’. To catch up on presentations from this meeting open our Meetings Recordings page (opens new window).

19th June,
2015

Full support group meeting.

We welcomed 2 guest speakers at this meeting;

Michael Bowen, Director of Research, College of Optometrists. Tim Shakespeare and Seb Crutch have developed a mutually beneficial relationship with the training and research departments of the College of Optometrists, through Michael, who remains key to this partnership.

Nada Savitch, Innovations in Dementia. Innovations in Dementia is a community interest company that works nationally with people with dementia, partner organisations and professionals with the aim of developing and testing projects that will enhance the lives of people with dementia.

Visit Innovations in Dementia for more information

To catch up on presentations from this meeting open our Meetings Recordings page (opens new window).

Regional Meetings

Regional meetings provide an informal opportunity to meet other people affected by PCA. Currently these take place in Oxfordshire/Central regions, Berkshire, Hertfordshire, , Kent, Gloucestershire, Chichester, Edinburgh/West Lothian and North West.

Hertfordshire regional meetings are coordinated by Di Garfield. Please contact Di on herts.pca@gmail.com for more information.

The venue is in the Activity Room at the Bushey Community Centre which is on the site of the Bushey Country Club (map - opens new window-.

Tip: When parking at the venue, drive all the way to the end of the car park and bear left (signs for car wash and more disabled parking) where you’ll find plenty of spaces and access straight into the activity room.

Berkshire regional meetings are coordinated by Helen Shepherd. Please email Helen on Helen@shepherdcharles.com for more information.

Thursday 26th Mary, 2-4pm - please see this flyer for details of our forthcoming meeting where Amelia Carton, UCL, and Simon Ball, an animator, will be presenting.

Held in the Barkham Day Hospital , Wokingham Hospital, 41 Barkham Road, Wokingham RG41 2RE (map - opens new window).

Oxfordshire/Central regional meetings are coordinated by Martina Wise. Please contact Martina on mrsmartinawise@gmail.com for more information.

Please check back again soon for information on upcoming Oxfordshire/Central regional meetings.

Kent regional meetings are coordinated by Betty Fernee. Please contact Betty on betfernee@aol.com for more information.

Held at the Holiday Inn in Bexleyheath (map - opens new window).

Gloucestershire regional meetings are coordinated by Richard Southerden. Please contact Richard on rsoutherden@aol.com

Held in Stonehouse near Stroud.

Chichester regional meetings are coordinated by Fiona Chabaane. Please contact Fiona on or fchaabane@hotmail.co.uk for more information.

Chichester regional meetings take place on Sundays, in Augusta Court Care Home, Winterbourne Road, Chichester, West Sussex PO19 6TT (map - opens new window).

Edinburgh & West Lothian regional meeting

The Edinburgh & West Lothian regional meetings take place at Stadium House, 114/5 Alderstone Road, Livingston, West Lothian, EH54 7DN.

North West regional meetings are coordinated by Andy Tysoe. Please contact Andy on Andy.Tysoe@cheshirewestandchester.gov.uk for more information

The first meeting will be held on 23 March 2016 at Weaver Hall Museum, Northwich, CW9 8AB. Please contact Andy for details of future meeting venues