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Dementia Research Centre

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Cognitive Disorders Clinic

The Cognitive Disorders Service runs in parallel with the Dementia Research Centre (DRC), part of the Department of Neurodegenerative Disease at the UCL Institute of Neurology (ION). The clinical and research components form a national centre of excellence for diagnosis and treatment of patients with cognitive problems, and the group is recognised internationally for ground-breaking research in dementia.

All forms of cognitive disorder are seen; however, we have particular expertise in young onset dementia, familial dementias and unusual degenerative diseases. Progressive disorders such as Alzheimer’s disease (AD), vascular dementia or frontotemporal dementia are commonly seen, but other less common disorders also assessed including limbic encephalitis, hereditary leucodystrophies and acquired cognitive problems such as amnesia, aphasia, visuospatial problems, apraxia, facial recognition and executive dysfunction due to varying aetiologies.  

How to make a referral

The clinic has a national referral base and has agreed referral pathways with the local CCGs. Referrals are accepted from primary, secondary and tertiary care.

Referrals can be addressed to:

Cognitive Disorders Clinic, Box 16, Dementia Research Centre, 8-11 Queen Square, London WC1 3BG.

Emailed to:  uclh.cognitivedisordersclinic@nhs.net 

or faxed to 020 3448 3104

For general practioners referring patients, referrals must be submmitted via ERS (NHS E-Referrals portal)

Administrative staff

Daniel Mason:  020 3448 3171                         Secretary to Professors Rossor, Fox, Warren and Dr Foulkes  

Locum Secretary:     020 3448 3011                Secretary to Professor Schott, Dr Cath Mummery

Marlene Bell       020 3448 3639                       Secretary to Dr Jonathan Rohrer and Dr Novraj Dhanjal

What the clinic visit involves

Patients are assessed in a consultant-led multidisciplinary clinic, including neurology, psychiatry, psychology, imaging, specialist nurse, neurophysiology and allied disciplines. 

Where appropriate, patients are investigated on the same day with MRI, psychology and EEG

MRI

This is a scan of your brain which takes place within a special (noisy) machine and the process should take under an hour.  You will be asked some questions to make sure there is no reason why you cannot have a scan (e.g. a pacemaker)

Psychology

These are tests of memory and thinking and may take around one and a half hours – you will be tested on your own but there is a waiting area in psychology department 

EEG

This is a record of the brain’s electrical activity, and involves special electrodes being attached, painlessly to the scalp.  It may take an hour 

If necessary patients can be admitted for further investigations to the Day Case Unit at the NHNN and we have a dedicated lumbar puncture clinic for rapid access to spinal fluid assessment. This can be an important part of the diagnostic process. Other modalities of imaging are also available.

In addition to clinical care, all patients are offered the opportunity to participate in clinical trials and other studies at the DRC.

Clinic times and consultants

Monday AM.  Led by Professors Nick Fox, Martin Rossor, Jason Warren, Jonathan Schott. Held at Basil Samuels OPD, Ground Floor, NHNN)  

Dr Alexander Foulkes and Dr Novraj Dhanjal also run clinics fortnightly on Monday mornings.  Clinics are held on 2nd Floor OPD, Royal London Hospital for Integrated Medicine 

Tuesday PM - led by Dr Jonathan Rohrer, and Dr Cath Mummery.  Held at Basil Samuels OPD, NHNN

Nurses

Katy Judd, Consultant Nurse

Frankie O’Shea, Advanced Nurse Practitioner

Katie Byrom, clinical nurse specialist (currently on maternity leave)  

Jane Douglas, Senior clinical Research Nurse. 

Contact number:  020 3448 3370/83467 or via email to:  cognitivedisordersclinic@uclh.nhs.uk

Support worker:  Nikki Zimmermann Alzheimer’s Society

CANDID service

Counselling and Diagnosis in Dementia is a nurse led information and advice service offering advice on how to access information on legal and financial matters, and the role of statutory and voluntary support services. 

The CANDID service is run by Katy Judd and Frankie O’Shea, is available to patients and families registered with an NHS specialist Cognitive Clinic and associated healthcare professionals.  It aims to enhance mutual understanding between patients and doctors through:

  • Face to face consultations at clinic appointments

  • A telephone helpline service between appointments and following discharge to local services

  • Nurse led therapeutics appointment

In addition, psychological intervention is available for patients and their carers, where appropriate with a clinical neuropsychologist, Kirsten Perkins.