UNICORNS: Uveitis in childhood prospective national cohort study
We need your help to answer important questions about what happens to children with uveitis, and why.
Childhood uveitis (inflammation inside the eye) is a rare disorder. UNICORNS is the first national, prospective study which will look at what happens to children after they are diagnosed with uveitis.
Through UNICORNS, we will collect information which will be used to advise affected families, balance treatment decisions to help improve outcomes, and plan further research.
What is the aim of the study?
We want to collect information about children with uveitis in the UK so that we can better understand the disease.
Why is the study being done?
There are still some unanswered questions about why children get uveitis and why some children with uveitis are more severely affected than others. By analysing data on a large number of children, we hope to provide information that will help doctors and parents make decisions about the most effective treatments.
Which children will be included in the study?
Any child or young person who has been newly diagnosed with uveitis in the UK since 1st March 2020.
What will happen to children who decide to take part?
Children and families will be asked to complete questionnaires about how the uveitis is affecting them. They will do this when they enter the study, and then every year.
We will also ask the child’s clinical team to share information, about their eyes and their health, with us. So far 26 eye centres across the UK have agreed to share their data: we hope that every centre will join us.
This study will not affect the treatment given to children or young people.
Families will be free to stop taking part at any time during the research without giving a reason.
Who is organising and funding the research?
The study is organised by Lola Solebo, and funded by the National Institute of Health Research.
For more information contact us at email@example.com
- Dr Lola Solebo (Study Chief Investigator, NIHR Clinician Scientist and Consultant), UCL Institute of Child Health, 30 Guilford Street, London WC1N 1EH, Tel: 020 7905 2250, Email: firstname.lastname@example.org
- Study administrator, Salomey Kellett, Email: email@example.com
If you haven't already, please watch our Uveitis videos:
Childhood uveitis - This video gives a brief overview of the disease, which part of the eye it affects and the resulting impact if left untreated
Childhood uveitis treatment - This video gives a look into how uveitis is treated using the ladder approach. It talks about the main types of medication given, how they are given and the possible side effects
Childhood uveitis research - This video talks through some of the questions children and their families want answered by research.