UCL Great Ormond Street Institute of Child Health


Great Ormond Street Institute of Child Health



Published Articles and Book Chapters


  •  Vemuri S, Butler AB, Brown K, Wray J, Bluebond-Langner M.  Palliative care for children with complex cardiac conditions: survey results. Online issue publication in Archives of Disease in Childhood 2022;107:282-287 on 17 Feb 2022. https://doi.org/10.1136/archdischild-2020-320866


  •  Hartley J, Candy B, Bluebond-Langner M, Downie J and Henderson EM. The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review. Pediatrics. August 2021, 148 (2) e2020014423; https://doi.org/10.1542/peds.2020-014423


  • Craig F, Henderson EM, Patel B, Murtagh F E M, Bluebond-Langner M. Palliative care for children and young people with stage 5 chronic kidney disease. Published in Pediatric Nephrology 37, 105–112 (2022). https://doi.org/10.1007/s00467-021-05056-1


  • Coombes L, Bristowe K, Ellis-Smith C, Aworinde J, Fraser L.K., Downing J, Bluebond-Langner M, Chambers L, Murtagh F E M., Harding R. Enhancing validity, reliability and participation in self-reported health outcome measurement for children and young people: a systematic review of recall period, response scale format, and administration modality. Published Online in Quality of Life Research 30, 1803–1832 (2021). https://doi.org/10.1007/s11136-021-02814-4 


  • Patel B, Downie J, Bayliss J, Stephenson A, Bluebond-Langner M. Long-Term Daily Administration of Aprepitant for the Management of Intractable Nausea and Vomiting in Children With Life-Limiting Conditions: A Case Series. Journal of Pain and Symptom Management. Volume 62, Issue 3, Sep 2021, Pages e225-e231. DOI: https://doi.org/10.1016/j.jpainsymman.2021.02.007 


  • Anderson A, Burke K, Bendle L, Koh M, McCulloch R, Breen M.  Artificial nutrition and hydration for children and young people towards end of life: consensus guidelines across four specialist paediatric palliative care centres, BMJ Supportive & Palliative Care 2021;11:92-100, Online issue publication February 18, 2021; DOI: https://spcare.bmj.com/content/11/1/92