UCL Great Ormond Street Institute of Child Health


Great Ormond Street Institute of Child Health



    Published Articles

    • Fraser LK, Aldridge J, Manning S, O’Leary S, Miller M, McCulloch R, Childs AM. Hospice provision and usage amongst young people with neuromuscular disease in the United Kingdom. European Journal of Paediatric Neurology. 2011 Jul 1;15(4):326-30. DOI: 10.1016/j.ejpn.2011.02.003. Available from: https://www.sciencedirect.com/science/article/pii/S1090379811000146
    • Craig F, Rajapakse D, McNamara K, Williamson N. Investing in primary care as the bridge for transitional care. Archives of Disease in Childhood. 2011; 96(1):1-2. DOI: 10.1136/adc.2010.191478. Available from: https://adc.bmj.com/content/96/1/1.short


    Book Chapters

    • Aldridge J, Miller M, Fraser L.K, McCulloch R, Manning S and Childs A.M. "Hospice Provision and Usage amongst Young People with Neuromuscular Disease in the United Kingdom." European Journal of Paediatric Neurology, 2011 July; 15(4):326-30. Epub 2011 Mar 2.
    • Craig F, Rajapakse D, McNamara K and Williamson N (2011). "Investing in Primary Care as the Bridge for Transitional Care." Arch Dis Child January 2011 96(1):1-2.
    • Hain R, Heckford E and McCulloch R.  "Paediatric Palliative Medicine in the UK: Past, Present, Future."  Arch Dis Child 2012; 97(4): 381-4. Epub 2011 Oct 28.
    • Hills M. Trainee Perspective. September 2011, published in APPM Newsletter.
    • Koh M and Craig F. "Quality of Life and Aspects of Diet and Nutrition in Dying Children. In Diet and Nutrition in Palliative Care", ed V.R. Preedy, Chapter 6, 2011. CRC Press.
    • Papadatou D, Bluebond-Langner M and Goldman A (2011). "The Team in Pediatric Palliative Care: Development, Organization, Functionality and Effectiveness," In Textbook of Interdisciplinary Pediatric Palliative Care. Joanne Wolfe, Pam Hinds and Barbara Sourkes (eds) PA: Elsevier Publishers.
    • Tietze A-L, Blankenburg M, Hechler T, Michel E, Koh M, Schluter B and Zernikow B. "Sleep Disturbances in Children with Multiple Disabilities." Sleep Medicine Reviews (2011). E-published June 2011.


    Abstracts Published / Poster Presentations

    • Beard C, Beecham E, Harden P, O'Donoghue D, Sweeney G, Matthews B. Poster presented at the British Renal Society Conference (June 2011) "Supporting Young Adults with Kidney Disease: Literature Review."
    • Craig F, Hemsley J, Laddie J and Brierly J. "Providing Family Choice In Place Of Extubation When Death is a Likely Outcome." European Association of Palliative Care (EAPC) May 2011.
    • Craig F, Rajapakse D, McNamara K, Williamson N. "Investing in primary care as the bridge for transitional care." In Arch Dis Child, 2011 96(1):1-2.
    • Hemsley J. "Access to and Experience of Paediatric Palliative Care Services by Black and Minority Ethnic Groups." European Association of Palliative Care (EAPC) May 2011.
    • Koh M, Mancini A, Craig F, Moss R, Twamley K, Kelly P, Bluebond-Langner M. Poster presented at RCPCH Spring conference (07th April 2011) "Improving Access to Palliative Care Services for Palliative Care Babies and Families."


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