Published Articles
- Henderson EM, Fletcher M. Nursing culture: an enemy of evidence-based practice? A focus group exploration. Journal of Child Health Care. 2015 Dec;19(4):550-7. DOI: 10.1177/1367493514530956. Available from: https://journals.sagepub.com/doi/pdf/10.1177/1367493514530956
- Oostendorp L, Durand M, Lloyd A, Elwyn G. "Measuring organisational readiness for patient engagement (MORE): an international online Delphi consensus study". BMC Health Services Research 2015;15(1):61. DOI: 10.1186/s12913-015-0717-3. Available from: http://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-015-0717-3
- Oostendorp LJ, Ottevanger PB, van de Wouw AJ, Schoenaker IJ, de Graaf H, van der Graaf WT, Stalmeier PF. Expected survival with and without second‐line palliative chemotherapy: who wants to know? Health Expectations. 2015 Dec;18(6):2903-14. DOI: 10.1111/hex.12275. Available from: https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.12275
- Hudson B, Ogden J, Whiteley M.S. "Randomized controlled trial to compare the effect of simple distraction interventions on pain and anxiety experienced during conscious surgery". European Journal of Pain. 2015 Nov;19(10):1447-55. DOI:10.1002/ejp.675. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ejp.675/abstract
- Bluebond-Langner M, Beecham E, Candy B, Langner R, Jones L. "Problems with preference and place of death for children too". The BMJ 2015 Nov 19;351:h6123.: DOI: 10.1136/bmj.h613. Available from: https://www.bmj.com/content/351/bmj.h6123.full
- Veldhuijzen van Zanten SE, van Meerxijk CL, Jansen MH, Twisk JW, Anderson AK, Coombes L, Breen M, Hargrave OJ, Hemsley J, Craig F, Cruz O, Kaspers GJ, van Vuurden DG, Hargrave DR, SIOPE DIPG Network. Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: results from a London cohort study and international survey. Neuro Oncology. 2015 Oct 11;18(4):582-8. DOI: 10.1093/neuonc/nov250. Available from: https://academic.oup.com/neuro-oncology/article/18/4/582/2509342
- Craig F, Henderson EM, Bluebond-Langner M. "Management of respiratory symptoms in paediatric palliative care" Current Opinion in Supportive & Palliative Care. 2015 Sep 1;9(3):217-26. DOI:10.1097/SPC.0000000000000154. Available from: https://journals.lww.com/co-supportiveandpalliativecare/FullText/2015/09000/Management_of_respiratory_symptoms_in_paediatric.5.aspx
- Llewellyn H, Jones L, Kelly P, Barnes J, O'Gorman B, Craig F, Bluebond-Langner M. Experiences of healthcare professionals in the community dealing with the spiritual needs of children and young people with life-threatening and life-limiting conditions and their families: report of a workshop. BMJ supportive & palliative care. 2015 Sep 1;5(3):232-9. DOI: 10.1136/bmjspcare-2012-000437. Available from: https://spcare.bmj.com/content/5/3/232.short
- Oostendorp LJ, Ottevanger PB, van der Graaf WT, Peters ME, Hermens RP, Stalmeier PF. Exploring the Routine Administration of Decision Aids for Palliative Chemotherapy to Patients by Nurses: A Qualitative Study Among Nurses and Oncologists. Cancer nursing. 2015 Jul 1;38(4):270-8. DOI: 10.1097/NCC.0000000000000182. Available from: https://journals.lww.com/cancernursingonline/fulltext/2015/07000/Exploring_the_Routine_Administration_of_Decision.4.aspx
- Moore D J, Henderson EM. "Applying a Developmental Perspective to the Study of Pain." Letter to the Editor, PAIN (The Journal of the International Association for the Study of Pain), 2015 Jun 1;156(6): 1172-3. DOI:10.1097/j.pain.0000000000000141. Available from: https://journals.lww.com/pain/fulltext/2015/06000/Applying_a_developmental_perspective_to_the_study.24.aspx
- Beecham E, Candy B, Howard R, McCulloch R, Laddie J, Rees H, Vickerstaff V, Bluebond-Langner M, Jones L. "Pharmacological interventions for pain in children and adolescents with life-limiting conditions". Cochrane Database of Systematic Reviews. 2015 Mar 13;(3). DOI:10.1002/14651858.CD010750.pub2. Available from: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD010750.pub2/abstract
- Crocker J, Beecham E, Kelly P, Dinsdale A, Hemsley J, Jones L, Bluebond-Langner M. "Inviting parents to take part in paediatric palliative care research: A mixed-methods examination of selection bias", Palliative Medicine. 2015 Mar;29(3):231-40. DOI: 10.1177/0269216314560803. Available from: https://journals.sagepub.com/doi/full/10.1177/0269216314560803
Published Abstracts / Poster Presentations
- M Sframeli, F Abel, F Craig, J Curry, M Scoto, F Muntoni, Ay Manzur "Spinal muscular atrophy type 1: Impact of NIV on survival and gastronomy decision in the UK setting" in DMCN (Developmental Medicine & Child Neurology) Vol 57, 1, p. 14. (Published January 2015)
- Paula Kelly "Training neonatal staff for the future of neonatal palliative care". Oral presentation (no abstract was submitted) at the 5th Annual Neonatal Palliative & End of Life Care Conference, The Continuum of Care for Families, Royal Society of Medicine, on 9th February 2015.
- Jenni Hallman, Faith Gibson, Myra Bluebond-Langner, Lorraine Pratt, Julie Bayliss. "The Experience of Massage in Children When Receiving Cancer Therapies" Oral presentation at the Inaugural Joint CCLG Nursing Discipline Group and RCN Children and Young People's Cancer Nurses Community Group, Educational Event. Presented on 4th March 2015.