• Great Ormond Street Hospital Laboratory Medicine
• Society for the Study of Inborn Errors of Metabolism
• British Inherited Metabolic Diseases Group
• The Society for Mucopolysaccharide Diseases (the MPS Society)
• NCL Resource - a gateway for Batten disease 
• British Society for Gene & Cell Therapy
• European Society of Gene & Cell Therapy
• American Society of Gene & Cell Therapy
• Find a Cure
• International Congress on Research of Rare and Orphan Diseases
• Genomics England
• Pediatric Neurotransmitter Disease Association
• International Working Group on Neurotransmitter Related Disorders
• Lily Foundation