Young Onset Dementia

Project Information

The aim of my PhD is to better understand  palliative care needs in people with young onset dementia.

In my cohort study, I plan to explore these needs using qualitative interview and data analysis of patient symptoms captured using the IPOS-Dem (Ellis-Smith et al 2018). This research  is part of the EMBED-Care project and is linked with work stream three, which will investigate the unmet needs of those with dementia and their association with comfort, Quality of Life, service utilization, care transitions, carer experiences and costs, including novel work on young onset and prion dementias.

Project Information

PhD Student

Ali-Rose Sisk

Dates: October 2019- October 2022

Funding: UCL Division of Psychiatry as matched funding to the EMBED-Care programme

Research Team

Prof. Elizabeth Sampson - Primary Supervisor

Prof. Jason Warren - Subsidary Supervisor

Dr Catherine Evans - Thesis Committee Member

Dr Kirsten Moore - Thesis Committee Member