The aim of developing this toolkit was to enable personalised care for community-living people with Parkinson’s, to reduce disability and preventable hospital admissions and to improve quality of life. The toolkit was developed through co-production and tested in a feasibility study. The effectiveness is being evaluated through a Randomised Controlled Trial. The links below provide more detail on the study, information on the team involved and the published findings from the research so far.
About the Study
PD-Care was a 5-year NIHR-funded study to develop a self-management toolkit for personalised Parkinson’s care at home, sponsored by Royal Free London NHS Foundation Trust.
Work Packages and Publications
PD-Care includes six work packages on Parkinson’s care and research, with published papers sharing results from toolkit development, feasibility testing, and the main randomised controlled trial.
Linked Project
The wearable sensor study is a linked project within PD-Care, where trial participants wore GENEActiv devices to monitor movement and sleep.
Meet the Team
Study involved two UCL departments and was led by Royal Free Hospital, working with KCL, several NHS Trusts, and people affected by Parkinson’s.
Collaborators:
- University College London
- Priment Clinical Trials Unit
- Royal Free London NHS Foundation Trust
- Bradford Teaching Hospitals NHS Foundation Trust
- Homerton University Hospital NHS Foundation Trust
- King’s College London
- Queen Mary University of London
- University of Surrey
This study/project is funded by/supported by the National Institute for Health and Care Research (NIHR) [Programme Grants for Applied Research (Grant Reference Number: RP-PG-1016-20001)]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
