The aim of developing this toolkit was to enable personalised care for community-living people with Parkinson’s, to reduce disability and preventable hospital admissions and to improve quality of life. The toolkit was developed through co-production and tested in a feasibility study. The effectiveness is being evaluated through a Randomised Controlled Trial. The links below provide more detail on the study, information on the team involved and the published findings from the research so far.
About the Study
PD-Care was a five-year study programme, funded by the National Institute for Health Research (NIHR) and sponsored by Royal Free London NHS Foundation Trust. The study aimed to develop and evaluate a
Meet the Team
The study involved a collaboration between the Department of Clinical and Movement Neurosciences and Centre for Ageing Population Studies, within the UCL Institute of Epidemiology and Healthcare.
Findings
Lay summaries and published papers showing the latest results from the toolkit development, feasibility testing and main randomised controlled trial.
Linked Projects
Many of our team members are working on other projects, that link in with the PD-Care programme of work. Find out more about who they are, what work they are doing and the publications they have produ
This study/project is funded by/supported by the National Institute for Health Research (NIHR) [Programme Grants for Applied Research (Grant Reference Number: RP-PG-1016-20001)]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
News & Updates
- Key updates:
- July 2024: All data collection completed
- April 2023 - February 2024: Data for the process evaluation collected through interviews and questionnaires with study participants
- July 2023: We have randomised our final participant, achieving our target of 346 participants
- October 2022: Over half of our target sample has been recruited
- July 2022: Pilot phase of RCT completed and first participant completed 6-month follow-up
- January 2022: First participant randomised into the study
- December 2021: Main trial open to recruitment
- April 2021: Completion of Feasibility trial and start of process evaluation and preparation for main trial
- November 2020: First participants assessed in the feasibility trial and first delivery of the Live Well with Parkinson's toolkit
- May 2020- September 2020: Development and finalisation of the self-management toolkit. Preparations made to deliver the feasibility study
Links
- Centre for Ageing Population Studies (CAPS): Research Department of Primary Care and Population Health (PCPH), UCL Institute of Epidemiology and Health Care
- Department of Clinical and Movement Neurosciences: UCL Queen Square Institute of Neurology
- Parkinson’s UK: The Parkinson's charity that provides information, support, research and fund raising
Contacts
- Name: Kumud Kantilal - Programme Manager
- Email: pd-care@ucl.ac.uk