The ICGNMD:
- Brings together experts from all over the world to collaborate in diganosis and research in NMDs
- Trains medical professionals who work with NMDs in genomic medicine, in their own countries
- Works to increase global access to genomic medicine, so more patients’ care can be informed by genetic information
- Builds a diverse world-wide cohort of patients with NMDs and their families, and increase their access to clinical trials.
Global Contributors
Many people worldwide contribute their time and energy to the ICGNMD. Here is our current list of contributors.
Information for Participants
On this page, we explain the purpose of the ICGNMD, and why the information and samples from participants is so vital to our work.
The ICGNMD is funded primarily by a £3.6m MRC Strategic Award to establish an International Centre for Genomic Medicine in Neuromuscular Diseases (ICGNMD) MR/S005021/1. Additional funding support is received from the National Brain Appeal, Guarantors of Brain and Partner host-matched funding.
Click below to make a donation to the ICGNMD
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New Vacancy - Bioinformatician
Work alongside clinical experts, bioinformaticians, and basic scientific researchers at a world-leading institution to make a tangible difference to the NMD rare disease community.
23 Jan 2026
Professor Reilly receives American Association of Neuromuscular & Electrodiagnostic Medicine award.
American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) is proud to present the the 2025 Honorary Member Award Professor Mary Reilly (UCL Queen Square Institute of Neurology).
07 Aug 2025
Professor Mary Reilly recognised with honorary MBE
Congratulations to Professor Mary Reilly, a globally renowned and award-winning clinical neurologist, who has been awarded an honorary MBE for her services to medicine.
18 Feb 2025
Contact Us
UK UCL Centre address: c/o Lindsay Wilson, Box 102, National Hospital for Neurology and Neurosurgery, Queen Square, London WC1N 3BG, UK
