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An Afternoon of Innovation: Rare Disease, Philanthropy and Patient Groups

06 December 2019, 4:00 pm–7:00 pm

Rare Disease, Philanthropy and Patient Groups poster

The UCL Clarke Society would like to invite you all to the latest of a series of events entitled Rare Disease, Philanthropy and Patient Groups

This event is free.

Event Information

Open to

All

Availability

Yes

Cost

Free

Organiser

Maria Livanos – Biochemical Engineering

Location

Woburn House
20 -24 Tavistock Square
London
WC1H 9HQ
United Kingdom

We have a really exciting line-up in what will be a fascinating keynote address and stimulating panel discussion. The event is free and open to all.
KEYNOTE: The quest to find a treatment for Black Bone Disease: parent entrepreneurship in action. Dr Nick Sireau, CEO and Chair of Trustees at Findacure and the AKU Society.
PANEL Discussion: A ‘no man left behind’ policy? – Radical thinking and a united front.
PANEL Chair and speakers: 
Sara Mole (Chair), Professor of Molecular Cell Biology, UCL MRC_LMCB
Adam Pearson – Award-winning actor, presenter, campaigner and rare disease sufferer and disability advocate
Ijeoma Uchegbu – Professor of Pharmaceutical Nanoscience, UCL School of Pharmacy
Elin Haf Davies – Founder & CEO at APARITO, a digital health company that is developing digital biomarkers
Paul Dalby – Professor in Biochemical Engineering and Biotechnology

About the Speaker

Sara Mole

Professor of Molecular Cell Biology, UCL MRC at UCL

More about Sara Mole