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As part of its commitment to quality, the National Amyloidosis laboratory participates annually in the external quality assurance schemes for Systemic Autoinflammatory Diseases, DNA sequencing NGS run by the European Molecular Genetics Quality Network (EMQN). Copies of the results of these external quality assessments are available on request.
Newly developed test may be out of the UKAS schedule of accreditation during an initial period but are performed to the same standards as accredited tests from the moment they are integrated in our Quality Management System. To update the schedule of accreditation and include new tests the laboratory applies to Extension to Scope.
Measurement Uncertainty (MU)
Details of measurement uncertainty values and application can be obtained from the laboratory upon request.
Consent
The referring clinician is responsible for obtaining consent for testing and possible storage of patient material.
The laboratory will seek patient consent prior to disclosing clinical information and family history to healthcare professionals that are not directly involved with the care pathway of the initial referral.
Complaints/ Compliments/ User Feedback
The laboratory is committed to continuously improving the quality of services provided and welcomes any comments or suggestions from the service users. A User Satisfaction Survey is conducted annually to establish the degree of user satisfaction pertaining to the usefulness and timeliness of our reports, and to solicit suggestions for improvement.
Please help us improve the service and direct compliments and complaints in writing to the Quality Manager, Ania Baginska
See the National Amyloidosis Centre Overview for more in-depth information on our services and The Registry of Hereditary Auto-inflammatory Disorders Mutations for information on hereditary fever genetics or The Registry for Mutations and Phenotypes in Hereditary Amyloidosis for information on hereditary amyloidosis genes.