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Data collection

Up to date, we have collected a very wide range of clinical and self-reported information on our participants. 

Phase Dates Type Participation Response rate (alive) Response rate (eligible*)
1 1985-1988 Questionnaire 1 & Clinic 10,308  -reference- -reference-
2 1989-1990 Questionnaire 2
8,132 79.3% 79.3%
3 1991-1994 Questionnaire 3 & Clinic 8,815 86.6% 86.6%
4 1995-1996 Questionnaire 4
8,628 85.3%  92.4%
5 1997-1999 Questionnaire 5 & Clinic 7,870 78.7%  86.3%
6 2001 Questionnaire 6
7,355  74.4%  82.5%
7 2002-2004 Questionnaire 7 & Clinic 6,967  71.6%  82.2%
8 2006 Questionnaire 8
7,173  75.2%  87.2%
9 2007-2009 Questionnaire 9 & Clinic 6,761  72.3%  84.5%
10 (**)
2011 Questionnaire 10 & Clinic 277  n/a  n/a
11 2012-2013 Questionnaire 11 & Clinic 6,318 70.9%  84.1%
12
2015-2016
Questionnaire 12 & Clinic 5632 66.6% 80.2%

Eligible: participants alive and not withdrawn from the study.

**Phase 10 was a pilot carried out in February and March 2011. A small group of Stress and Health participants were selected randomly and invited to attend our Phase 10 clinic. This enabled us to successfully pilot new measures for mental well-being introduced at Phase 11.

clinic-photos

The study is approved by the London-Harrow Research Ethics Committee and the Scotland Research Ethics Committee. All participants who had clinical examination were asked to give written informed consent (pdf).

Documentation

Data Processing

Please check our Frequently Asked Questions (FAQs) on data processing.

data-flow

Clinic video (phase 9)