Dr Louise Jones

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Personal Profile

Name: Louise Jones Email: caroline.jones@ucl.ac.uk
Title: Dr Tel: 7811989070
Department: Mental Health Sciences Unit Fax:
Position: Clinical Research Fellow Address: Department of Mental Health Sciences, Royal Free & Universit, Rowland Hi, London, NW3 2PF
Research Domain: Ageing, Cancer, Neuroscience, Population Health Web Page: Personal Web Page

Profile

Research Description

Qualitative and quantitative research in end of life care for those with cancer and other advanced progressive diseases including the management of the frail elderly and young adults (16+) with a focus on the patient, carer and family experience of illness and care.
Development and testing effectiveness of complex interventions; continuity of care; advance care planning; interventions for sexual dysfunction after treatments for cancer; exploration of spirituality and existential concerns in those with advanced progressive disease; bereavement outcomes and carer support issues in advanced diseases including dementia and end stage kidney disease; effects of opioids on cognitive and sexual function; randomised controlled trials. Systematic reviews with Cochrane collaboration and pain and palliative care, depression, anxiety and neurosis, and consumer groups.

Research Activities

CanTalk RCT of CBT for depression in advanced cancer

End of life care for patients with advanced cancer and other progressive diseases

End of life care in dementia: The implementation of an intervention

Pain and Impaired Cognition- EU Collaborative

end of life care for children and young adults

Education Description

Joint supervision of PhD students in economics of end of life care, decision making in young people with advanced progressive diseases.

UCL Collaborators

Prof Gill Livingston; Prof Michael King; Dr Liz Sampson; Dr Ingela Thune-Boyle

External Collaborators

Mrs Riitta Kukkastenvehmas; Dr Adrian Tookman

Publications

    2013

    • king M, Vasanthan M, Petersen I, Jones L, Marston L, Nazareth I (2013). Mortality and Medical Care after Bereavement: A General Practice Cohort Study. PLoS One, 8(1): e52561., - . doi:10.1371/journal.pone.0052561

    2012

    • Candy B, Jackson K, Jones L, Tookman A, King M (2012). Drug therapy for symptoms associated with anxiety in adult palliative care patients. Cochrane Database Syst Rev., 10, - . doi:10.1002/14651858
    • Harrison Dening K, Jones L, Sampson EL (2012). PREFERENCES FOR END OF LIFE CARE: A NOMINAL GROUP STUDY OF PEOPLE WITH DEMENTIA AND THEIR FAMILY CARERS. Palliative Medicine, , - . doi:10.1177/0269216312464094
    • Roulston A, Bickerstaff D, Haynes T, Rutherford L, Jones L (2012). A pilot study to evaluate an outpatient service for people with advanced lung cancer. International Journal Palliative Nursing, 18(5), 225 - 233.
    • Scott S, Sampson EL, Jones L (2012). The Compassion programme: looking at improving end-of-life care for people with advanced dementia. International Journal Palliative Nursing, 18(5), 212 - 216.
    • Candy B, Jones L, Varagunam M, Speck P, Tookman A, King M (2012). Spiritual and religious interventions for well-being of adults in the terminal phase of disease. Cochrane Database of Systematic Reviews, 119(5, 2012), - .
    • Leurent B, Candy B, Jones L, King M (2012). Response to Dr Goy's commentary.. Evid Based Ment Health, 15(2), 27 - . doi:10.1136/ebmental-2011-100550
    • Low J, Davis S, Drake R, King M, Tookman A, Turner K, Serfaty M, Leurent B, Jones L (2012). The Role of Acceptance in Rehabilitation in Life-Threatening Illness. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 43(1), 20 - 28. doi:10.1016/j.jpainsymman.2011.03.020
    • Sampson EL, Leurent B, Blanchard MR, Jones L, King M (2012). Survival of people with dementia after unplanned acute hospital admission: a prospective cohort study.. , , - . doi:10.1002/gps.3919
    • Sampson EL, Leurent B, Blanchard MR, Jones L, King M (2012). Survival of people with dementia after unplanned acute hospital admission: A prospective cohort study. International Journal of Geriatric Psychiatry, , - .
    • Jones L, FitzGerald G, Leurent B, Round J, Eades J, Davis S, Gishen F, Holman A, Hopkins K, Tookman A (2012). Rehabilitation in advanced, progressive, recurrent cancer: a randomised controlled trial.. Journal Pain and Symptom Management, , - .
    • Sampson E, Mandal U, Holman A, Greenish W, Dening KH, Jones L (2012). Improving end of life care for people with dementia: a rapid participatory appraisal. BMJ Supportive and Palliative Care, , - . doi:10.1136/bmjspcare-2011-000177
    • Candy B, Jackson K, Jones L, Leurent B, Tookman A, King M (2012). Drug therapy for delirium in terminally ill adult patients. Cochrane Database Syst Rev., 11, - .
    • Chan D, Livingston G, Jones L, Sampson EL (2012). Grief reactions in dementia carers: a systematic review. International Journal of Geriatric Psychiatry, , - . doi:10.1002/gps.3795.

    2011

    • Jones L (2011). Death, Dying, and Social Differences Chapter on end of life care for the homeless. In Oliviere D, Monroe B, Payne S (Ed.), Death, Dying, and Social Differences (pp. - ). : Oxford Univ Pr.
    • Scott S, Jones L, Blanchard MR, Sampson EL (2011). Study protocol: the behaviour and pain in dementia study (BePAID).. BMC Geriatr, 11, 61 - . doi:10.1186/1471-2318-11-61
    • Dening KH, Jones L, Sampson EL (2011). Advance care planning for people with dementia: a review.. Int Psychogeriatr, 23(10), 1535 - 1551. doi:10.1017/S1041610211001608
    • Candy B, King M, Jones L, Oliver S (2011). Using qualitative synthesis to explore heterogeneity of complex interventions.. BMC Medical Research Methodology, 11, - . doi:10.1186/1471-2288-11-124
    • Davis S, Kennedy P, Greenish W, Jones L (2011). Are the homeless dying without access to palliative care?. British Medical Journal, http://www.bmj.com/content/342/bmj.d3018/reply, - .
    • Davis S, Kennedy P, Greenish W, Jones L (2011). Supporting homeless people with advanced liver disease approaching the end of life.
    • JONES L, Barnes KA, Barlow CA, Harrington J, Ornadel K, Tookman A, King M (2011). Advance care planning discussions in advanced cancer: analysis of dialogues between patients and care planning mediators.. Palliative and Supportive Care, , - .
    • JONES L, Harrington J, Barlow CA, Tookman A, Drake R, Barnes K, King M (2011). Advance care planning in advanced cancer – can it be achieved? An exploratory randomised patient preference trial of a care planning discussion. Palliative and Supportive Care, , - .
    • Carroll EM, Kamboj SK, Conroy L, Tookman A, Williams AC, Jones L, Morgan CJ, Curran HV (2011). Facial affect processing in patients receiving opioid treatment in palliative care: preferential processing of threat in pain catastrophizers.. J Pain Symptom Manage, 41(6), 975 - 985. doi:10.1016/j.jpainsymman.2010.08.011
    • Sampson EL, Thuné-Boyle ICV, Kukkastenvehmas R, King M, Leurent B, Tookman A, Blanchard MR (2011). Palliative assessment and advance care planning in severe dementia: an exploratory randomised controlled trial of a complex intervention. Palliative Medicine, 25(3), 197 - 209.
    • Jones L (2011). Profile; research in end of life care. Public Service Review UK Science and Technology, (Issue 4), - .
    • Candy B , Drake R , Leurent B , King M , Jones L (2011). Interventions for supporting informal carers of patients in the terminal phase of a disease.. Cochrane Database of Systematic Reviews, (6): CD007617, - .
    • Candy B, Jones L, Goodman M, Drake R, Tookman A (2011). Laxatives or methylnaltrexone for the management of constipation in palliative care patients. Cochrane Database of Systematic Reviews, (1):CD003448., - .
    • Agnew A, Manktelow R, Haynes T, Jones L (2011). Bereavement assessment practice in hospice settings: Challenges for palliative care social workers. British Journal of Social Work, 41(1), 111 - 130.

    2010

    • Agnew A, Manktelow R, Taylor BJ, Jones L (2010). Bereavement needs assessment in specialist palliative care: a review of the literature. Palliative Medicine, 24(1), 46 - 59. doi:10.1177/0269216309107013
    • JONES L, Candy B, Holman A, Leurent B, Davis S S (2010). Hospice care delivered at home, in nursing homes and in dedicated hospice facilities: A systematic review of quantitative and qualitative evidence.. International Journal Nursing Studies, , - .
    • JONES L, Low J, Pattenden J, Beattie J, Candy B (2010). Palliative care in advanced heart failure: An international review of the perspectives of recipients and health professionals on care provision.. Journal Cardiac Failue, , - . doi:10.1016/j.cardfail.2010.10.003
    • Thuné-Boyle ICV, Sampson EL, Jones L, King M, Lee DR, Blanchard MR (2010). Challenges to improving end of life care of people with advanced dementia in the UK. Dementia, 9(2), 259 - 284.

    2009

    • Candy B, Jones L, Williams R, Tookman A, King M (2009). Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database of Systematic Reviews, (1), CD007617 - . doi:10.1002/14651858.CD007617
    • Low J, Gessler S, Williams R, Daniells E, Brough V, Tookman A, Jones L (2009). Screening for distress and depression in cancer patients: is ultrashort depression screening a valid measure in the UK? A prospective validation study.. J Pain Symptom Manage, 38(2), 234 - 243. doi:10.1016/j.jpainsymman.2008.08.006
    • Candy B, Jones L, Speck P, Tookman A, King M (2009). Spiritual and religious interventions for adults in the terminal phase of disease. Cochrane Database of Systematic Reviews, (1), CD007544 - . doi:10.1002/14651858.CD007544
    • Sampson EL, Blanchard MR, Jones L, Tookman A, King M (2009). Dementia in the acute hospital: prospective cohort study of prevalence and mortality. British Journal of Psychiatry, 195(1), 61 - 66.
    • King M, Jones L, McCarthy O, Rogers M, Richardson A, Williams R, Tookman A, Nazareth I (2009). Development and pilot evaluation of a complex intervention to improve experienced continuity of care in patients with cancer. British Journal of Cancer, 100(2), 274 - 280. doi:10.1038/sj.bjc.6604836
    • Sampson EL, Candy B, Jones L (2009). Enteral tube feeding for older people with advanced dementia. Cochrane Database of Systematic Reviews, (2), CD007209 - . doi:10.1002/14651858.CD007209.pub2
    • Candy B, Sampson EL, Jones , L (2009). Enteral tube feeding in older people with advanced dementia: Findings from a Cochrane systematic review. International Journal of Palliative Nursing, 15(8), 396 - 404.
    • Sampson EL, Candy B, Jones L (2009). Enteral tube feeding for older people with advanced dementia.. Cochrane database of systematic reviews (Online), (2), - .
    • sampson e l , Harrison Dening K , Greenish W , Mandal U , Holman A , Jones L (2009). End of life care for people with dementia.

    2008

    • Candy B, Jones L, Williams R, Tookman A, King M (2008). Psychostimulants for depression. Cochrane Database of Systematic Reviews, (2), - .
    • Candy B, Jones L, Williams R, Tookman A, King M (2008). Phosphodiesterase type 5 inhibitors in the management of erectile dysfunction secondary to treatments for prostate cancer: findings from a Cochrane systematic review. BJU International, , - . doi:10.1111/j.1464-410X.2008.07668.x
    • Sampson E, Thuné-Boyle I, Kukkastenvehmas R, Jones L, Tookman A, King M, Blanchard M (2008). Palliative care in advanced dementia:a mixed methods approach for the development of a complex intervention. BMC Palliative Care, 7, - .
    • King M, Jones , L , Nazareth , I (2008). Concern and continuity in care for patients with cancer and their carers: A multi-method approach to enlightened management.
    • King M, Jones L, Richardson A, Murad S, Irving A, Aslett H, Ramsay A, Coelho H, Andreou P, Tookman A, Mason C, Nazareth I (2008). The relationship between patients' experiences of continuity of cancer care and health outcomes: a mixed methods study. British Journal of Cancer, 98(3), 529 - 536. doi:10.1038/sj.bjc.6604164
    • Nazareth I, Jones L, Irving A, Aslett H, Ramsay A, Richardson A, Tookman A, Mason C, King M (2008). Perceived concepts of continuity of care in people with colorectal and breast cancer - a qualitative case study analysis. European Journal of Cancer Care, 17(6), 569 - 577. doi:10.1111/j.1365-2354.2007.00891.x
    • Low J, Smith G, Burns A, Jones L (2008). The impact of end-stage kidney disease (ESKD) on close persons: A literature review. NDT Plus, 1(2), 67 - 79.
    • Gessler S, Low J, Daniells E, Williams R, Brough V, Tookman A, Jones L (2008). Screening for distress in cancer patients: is the distress thermometer a valid measure in the UK and does it measure change over time? A prospective validation study.. Psychooncology, 17(6), 538 - 547. doi:10.1002/pon.1273

    2007

    • Walsh K, Jones L, Tookman A, Mason C, McLoughlin J, Blizard R, King M (2007). Reducing emotional distress in people caring for patients receiving specialist palliative care - Randomised trial. BRIT J PSYCHIAT, 190, 142 - 147. doi:10.1192/bjp.bp.106.023960
    • Barnes K, Jones L, Tookman A, King M (2007). Acceptability of an advance care planning interview schedule: a focus group study. Palliative Medicine, 21(1), 23 - 28.
    • Miles CL, Candy B, Jones L, Williams R, Tookman A, King M (2007). Interventions for sexual dysfunction following treatments for cancer. Cochrane Database of Systematic Reviews, (4), CD005540 - .

    2006

    • King M, Jones CL, Barnes K, Low J, Walker C, Wilkinson S, Mason C, Sutherland J, Tookman A (2006). Measuring spiritual belief: development and standardisation of a Beliefs and Values Scale.. Psychological Medicine, 36, 417 - 425. doi:10.1017/S003329170500629X
    • Shah S, Blanchard M, Tookman A, Jones L, Blizard R, King M (2006). Estimating needs in life threatening illness: a feasibility study to assess the views of patients and doctors. PALLIATIVE MED, 20(3), 205 - 210. doi:10.1191/0269216306pm1130oa

    2005

    • Kamboj SK, Tookman A, Jones L, Curran HV (2005). The effects of immediate-release morphine on cognitive functioning in patients receiving chronic opioid therapy in palliative care. Pain, 117(3), 388 - 395. doi:10.1016/j.pain.2005.06.022
    • Fincham L, Copp G, Caldwell K, Jones C, Tookman A (2005). Supportive care: experiences of cancer patients. European Journal of Oncology Nursing, 3, 258 - 268.

    2004

    • Jones L (2004). Practicalities of spiritual assessment. Guest Editorial. International Journal of Palliative Nursing, 10, - .
    • Kamboj S, Tookman A, Jones L, Curran HV (2004). Retrograde and anterograde memory impairment following breakthrough morphine in patients receiving palliative care.

    2003

    • Ananth H, Jones L, King M, Tookman A (2003). The impact of cancer on sexual function: a controlled study. Palliative Medicine, 17(2), 202 - 205.

    2002

    • Walsh K, King M, Jones L, Tookman A, Blizard R (2002). Spiritual beliefs may affect outcome of bereavement: prospective study. BMJ (Clinical Research Ed.), 324(7353), 1551 - 1555. doi:10.1136/bmj.324.7353.1551

    1998

    • Jones CL, King MB, Speck P, Kurowska A, Tookman AJ (1998). Development of an instrument to measure terminal restlessness.. Palliative Medicine, 12(2), 99 - 104.

    • Jones L, Harrington J, Scott S, Davis S, Lord K, Vickerstaff V, Round J, Candy B, Sampson EL (). CoMPASs:IOn programme (Care of Memory Problems in Advanced Stages of dementia: Improving our Knowledge); protocol for a mixed methods study. BMJ Open Published online 27 Nov 2012, , - .
    • Brown M, Sampson EL, Jones L, Barron A (). Prognostic indicators of six-month mortality in elderly people with advanced dementia: A systematic review. Palliat Med. 2012 Nov 22. [Epub ahead of print], In Press, - .
    • Low J, Davis S, Drake R, King M, Turner K, Eades J, Tookman A, Jones L (). A pilot study of the relationship between acceptance and rehabilitation outcomes in patients receiving specialist palliative care..
    • Low J, Davis S, Drake R, King M, Turner K, Tookman A, Jones L (). “ACT : A pilot study to assess the role of acceptance in rehabilitation at the end of life”.
    • Harrington J, Barlow C, Barnes K, Ornadel K, King M, Jones L (). Advance care planning in advanced cancer: patient -professional dialogues.
    • Holman A, Mandal U, Sampson EL, Harrison DK, Greenish W, Jones L (). Assessing the costs of end of life care for people with dementia.
    • Candy B, Jones L, Davis S, Holman A, Leurent B (). NON-STATUTORY PALLIATIVE CARE IN THE COMMUNITY: A SYSTEMATIC REVIEW.
    • Jones L, Owen F, Llewellyn H, Leurent B, King M (). Study to explore the associations between beliefs and psychological status in patients receiving palliative care.
    • Candy B, Jones L, Drake R, Leurent B, King M (). Supportive interventions for family carers of patients in the terminal phase of a disease: A novel approach to synthesis on effectiveness.
    • King M, Llewellyn H, Owen F, Tookman A, Leurent B, Jones L (). The association between spiritual beliefs and psychological status in patients with life threatening illness.
    • Low J, Davis S, Llewellyn H, Burns A, Jones L (). ‘To dialyse, or not to dialyse – that is the question’: Treatment dilemma for elderly patients with end-stage kidney disease (ESKD).
    • Harrison-Dening K, Greenish W, Jones L, Mandal U, Sampson EL (). Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study. BMJ Supportive and Palliative Care, 2012, - . doi:10.1136/bmjspcare-2011-000178
    • Low J, Myers J, Smith G, Burns A, Davis S, Hopkins K, Johnston S, Jones L (). The experiences of close persons of ESKD patients on Maximum Conservative Management: a narrative study.
    • Bluebond-Langner M, Beecham E, Candy B, Langner R, Jones L (). Preferred place of death for children and young people with life-limiting and life-threatening conditions: a systematic review of the literature and recommendations for future inquiry and policy. Palliative Medicine In Press, , - .
    • King M, Vasanthan M, Petersen I, Jones L, Marston L, Nazareth I (). Mortality and medical care after bereavement: a general practice cohort study. PLoS One In Press, , - .
    • Harrington J, Barlow C, Barnes K, Ornadel K, Drake R, King M, Jones L (). Advance care planning in advanced cancer – can it be achieved? A randomised controlled preference trial of a care planning discussion.