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Social Functioning in Dementia Scale (SF-DEM)

SF-DEM is a patient- and carer-reported outcome measure designed for the assessment of the social functioning of people with dementia.

Scale development and validation

 

We developed the Social Functioning in Dementia Scale (SF-DEM) at University College London together with researchers at Brighton and Sussex Medical School and clinicians at Camden and Islington NHS Foundation Trust, UK.

The SF-DEM is designed to assess social functioning in people with mild dementia in order to identify changes related to dementia. It is the only available measure specifically designed to assess the engagement with social networks and participation in social activities of a person with dementia.

 

SF-DEM consists of two questionnaires.

  • SF-DEM - Person with dementia: a 20 item interviewer-administered questionnaire answered by a person with dementia
  • SF-DEM - Carer: a 20 item interviewer-administered questionnaire answered by a family carer of a person with dementia

The social functioning in dementia scale was developed and validated using key psychometric principles in a population of older people living in Camden and Islington, London (Sommerlad et al 2017). We undertook a further validation study and established the factor structure in a multi-centre study based in London and Sussex (Budgett et al 2019) and have established the minimum clinically important difference for the scale (Levene et al 2022).

Researchers in Germany have translated and validated the SF-DEM (Grothe et al 2022). Collaborators in Denmark, Japan, Taiwan, Turkey and Hong Kong are currently translating and validating the scale for their local settings.

 

SF-DEM Files for download

 

 

 

SF-DEM is freely available for use by other researchers under a Creative Commons Attribution-NonCommercial 4.0 International License.

 

German SF-DEM

The German SF-DEM (Sozialfunktionen bei Demenz - Fragebogen) was developed and validated by Susanne Röhr, Jessica Grothe, Melanie Luppa, and Steffi G. Riedel-Heller from the ISAP at University of Leipzig (https://www.uniklinikum-leipzig.de/einrichtungen/isap).

Contact information: Prof. Steffi G. Riedel-Heller, MPH; Phone: +49 (0)341/9715408; e-mail: Steffi.Riedel-Heller@medizin.uni-leipzig.de

 

Hong Kong (Cantonese) SF-DEM

The Hong Kong (Cantonese) SF-DEM (HK SF-DEM) was developed by Dr Kenny Chui from The Chinese University of Hong Kong.

Contact information: Dr Kenny Chui; e-mail: kenny.chui@jccpa.org.hk

 

 

 

Danish SF-DEM

The Danish SF-DEM (DK-SF-DEM) was translated and culturally adapted by Dr Sif Blandfort and Dr Stina Bjornskov from VIA University College, Aarhus.

(https://www.ucviden.dk/da/organisations/program-for-demens/projects/)

Contact information: Dr Sif Blandfort; Phone: +45 87552987; e-mail: sibl@via.dk

 

 

 

 

Taiwanese SF-DEM

The Taiwanese SF-DEM (台灣版失智症社交功能量表) was developed and validated by Dr Ruan-Ching Yu and Dr Cheng-Chang Yang at Shuang Ho Hospital (SHH), Taipei Medical University (TMU), Taiwan.

Contact information: Dr Ruan-Ching Yu (e-mail: ruan-ching.yu.18@ucl.ac.uk); Dr Cheng-Chang Yang (e-mail: 19589@s.tmu.edu.tw)

 

 

 

Validation studies