Primary Care Database User Group Meetings
The most recent meeting was held on 26 March and featured presentations on two THIN projects on carers and bereavement.
The first presentation was by Rebecca Lodwick and Liz Sampson:
"Health outcomes and health service use of cohabitees living with terminally ill patients with cancer, chronic obstructive airways disease, and dementia."
Background: There have been few epidemiological studies of informal carers of people who are dying. We aimed to describe the characteristics of cohabitees of people dying with cancer, chronic obstructive pulmonary disease (COPD), and dementia.
Methods: In the THIN database, patients were initially identified who had diagnoses of lung or colorectal cancer, COPD, or dementia, and who died between 2003-2012 aged 40 or over. The cohabitee cohort was constructed by identifying those recorded as being in two-adult households, with a maximum age difference between patient and cohabitee of 15 years, and analysis was restricted to cohabitees aged 60 or over.
Results: A total of 13,693 individuals were included in the cohabitee cohort. Relatively few (950, 6.9%) were identified as carers in primary care records, with this proportion highest among cohabitees of people who died with dementia (15.4%).
Conclusions: Recording of people who care for a cohabitee at the end of life is low. This may indicate missed opportunities for support in primary care and may underestimate the contribution that informal family carers make to end of life care in the UK.
The second presentation was by Michael King and he will talk about a study on bereavement: "Mortality and Medical Care after Bereavement: A General Practice Cohort Study". This study was published in PLoS ONE in 2013.
You can sign up to the Primary Care Database User Group
mailing list by registering on JISCMail.
Directions to the Royal Free are available on our contact page. We also have a map with directions to our department in the Royal Free.
11 December 2013
For our Christmas PDUG, we went back all the way the very start of primary care databases with Gillian Hall. Dr Hall, who has been involved in primary care database research from the very beginning talked about the history of these databases, as well as guidelines and good practice when using them.
30 October 2013
Professor Hedvig Nordeng, from the University of Oslo, talked about pharmacoepidemiological studies on medication use and safety during pregnancy.
22 May 2013
Dr Daniel Prieto-Alhambra gave a short introduction to the Catalan SIDIAP primary care database.
9 April 2013
Dr Anoop Shah presented his Freetext Matching Algorithm (FMA), a program which can convert free text entered by clinicians into relevant Read codes. The program, and the paper describing the program, are available free and open access on BioMed Central.
5 February 2013
Our first PDUG meeting of 2013 featured a short presentation by Myriam Alexander on the exploration of multiple measurements of cardiovascular risk factors in THIN. This was followed by Laura Shallcross who presented some results of her PhD project on skin infections in primary care.
4 December 2012
Katie Harron from the UCL Institute of Child Health gave a talk on data linkage and what can go wrong when linking datasets.
16 October 2012
The meeting was about the development of reporting guidelines
for electronic health records (RECORD). More information is available from the RECORD website: www.record-statement.org.
19 September 2012
We started the new academic year with a very special user group meeting featuring Dr Tarek Hammad, deputy director
for the Division of epidemiology at the US Food and Drug Agency (FDA). He talked about the role of epidemiology in drug safety from a regulatory perspective.
9 July 2012
Jordana Peake, from the UCL Institute for Women's Health presented on the use of patient identifiable information for data
linkage for research into neural tube defects in ethnic communities. And Jenny Woodman, from the UCL Institute for Child Health, told us about the role
of the GP for children with (possible) abuse and neglect: a mixed methods study.
14 June 2012
This usergroup meeting focussed on time series analyses. Lisa Szatkowski and Tessa Langley from the UK
Centre for Tobacco Control Studies and University of Nottingham presented
their work on evaluation of tobacco control policies: Evaluating tobacco control policies using time series
analysis: examples and reflections. Some of their work is detailed in a recent paper using structural vector autoregression analysis.
28 March 2012
We had three speakers, who all have substantial experience with analysing HES
data. Pia Hardelid (ICH, UCL), Nick Freemantle (PCPH, UCL) and Ruth Gilbert (ICH, UCL). Pia provided us with an overview of HES data and how it is organised, Nick told us about a study he was involved in that used HES data to assess whether weekend hospitalisation is associated with an increased risk of death, and finally, Ruth shared her expertise on validating codes in HES.
7 November 2011
Ruth Brauer from the London School of Hygiene and Tropical Medicine (LSHTM) told us all about her work on antipsychotic agents and myocardial
infarction. She compared the results from a case control study to a self-controlled case series design.
28 September 2011
Welch told us about a two stage method to identify outliers in
electronic databases. The slides from this presentation can be found here, and the paper discussed is in press, but will be added to our publications list once it is available.
18 July 2011
a member of our very own THIN team, gave a talk about prevalence and
patterns of long term
prophylactic antibiotic use in COPD, and how to use multiple imputation
to account for missing data in antibiotic prescribing.
28 March 2011
Beatrix De La Iglesia from the University of East Anglia talked about the work for their recent publication in Heart: "Performance of the ASSIGN cardiovascular disease risk score on a UK cohort of patients from general practice".
Page last modified on 21 mar 14 16:36 by Linda Wijlaars